Forums:
I am curious how long one should stay on list 1and have two other questions:
no coconut oil?
is juicing ok if we don't use fruit?
am doing probiotics daily, any other supplements helpful at the beginning?
many thanks. Just joined and eager to receive support,
carey
Hi Carey,
Hi Carey,
I don't want to discourage you - I did what you did for several months before flying out to see Dr. Brizman. The thing is, there really isn't an answer to your questions - there is no set rule - everyone is so different and your treatment with Dr. Brizman would be based on your own uinque experience. There are certain definate things to avoid - all sugar, all alchol, all coconut, soy, peanute, blue cheese, vinegar,mushrooms,pot,as many over the counter drugs as possible. As for supplemnts, as I said before, one persons supplement could be completely wrong for your condition.
I hope you get a chance to see her - you'll never regret it.
Thank you Denise, I would
Thank you Denise, I would like to beta bit of insight about how she works before flying out. It's so great to finally find a sight that KNOWS this ailment. I have felt so alone for so long.
Also how often do you have to fly out to see her?
plooking forward to finally healing,
I pray that it's possible. I have been so hopeless for so long.
carey
Hi Carey, I posted a long
Hi Carey, I posted a long answer on your other thread.
You only have to fly out once!!! Then you have phone appointments to suit your budget, schedule and healing pace.
Please, please no juicing. Too strong for IC. You may flare your symptoms.
I wish someone could tell me how long it takes to go up the lists but it is very individual like Denise said.
If we don't excel at health, the only other option is disease.
Mimi, Thank you!
Mimi, Thank you!
I am curious why no juicing if we I juice only vegetables? And how oe could drive the IC deeper by following other protocols? I am so excited to join this forum. Nervous however because I have thought so many times something would actually work.
best, Carey
Hi Carey,
Hi Carey,
Not sure of your questions - although, I do know that some people get flares from certain types of vegetables. I know that she put me on something called Juice Plus - I still think it made my anxiety worse. It wasn't until I started treatment that it became really clear that what you do put into your mouth and on your skin has HUGE health ramifications. As for masking, I can speak to one type of med - one of the benzos which Dr. B hates. When iwas on a small doseage for years my IC went dormant. As soon as the doctors took me off it went rampant.
I see., Very helpful. I know
I see., Very helpful. I know juice plus. It actually a pyramid product from what I understand but a good product overall. Makes me nervous to hear that she put you on something that made you worse unless it caused detox maybe?
Thank ou so much for taking the time for me. I feel so grateful to have found this site. I finally feel Less isolated.
I suffer from intense burning all the time. Usually worse in the morning and the ups and downs all day. Anything green makes it worse which seems crazy. It's so hard to detect rreaction as. Sometimes carbs and sugar seem to make it better when I have a random splurge (which I know now I absolutely cannot do). It seems bowel movements make pain better although sometimes worse...everything seems completely random which is very discouraging...
i hold on and feel each message I receive is so important.
any tips on how to begin of course berore I can consider getting to California...would be great. Also, I have to be careful with so much broccoli And cruciferous veggies because of my thyroid...ugh. So many limitations feels like prison and it appears some people have to work for years to get better...I read on one website that some people do not get better with this protocol..time to read up on forums...I've tried so many things.
grateful,
Carey
Hi Carey,
Hi Carey,
I would also like to know which forum said that some people do not get better in this protocol. I understand that not everyone is going to respond to Dr. Brizman's treatment, but I believe she has a very high percentage of patients who do extremely well in her care. I am one of them and one who healed very quickly. Considering she takes care to bring your whole body back to health using safe, immunity building treatments, it's a win win situation that I would encourage anyone to try before going down any other conventional or alternative path. And I would put my full faith in her husband. I have met him and found him to be a compassionate and extremely intelligent person. I am grateful every day of my life that I found ICAMA. I hope it brings the same blessings into your life as it has mine.
Sue
Hi Carey, as everyone said
Hi Carey, as everyone said already the progression through the diet lists is very individual but just wanted to say that I think many people do move quite quickly from list 1 to 2. I was only on list 1 for two weeks and Matia told me she likes to get people onto list 2 as soon as possible because list 1 is so limited and hard to keep up. People's reactions are very individual though ... I cannot tolerate coffee at all but I do fine with carrots and nuts off of list 3. It seems that maybe patients who are weaning off medications spend longer on list 1 than those who aren't. Anways just thought I'd add that; the idea of being on a very limited diet such as list 1 for a long length of time can seem daunting and wanted to let you know it might not be for too long!
Hi Carey
Hi Carey
Which forums did you read that people don't do well on this protocol? There are a handful over the years and there are various reasons why that would be hard for any of us to identify, but from what I hear from former patients, the vast majority of patients that treat with ICAMA do very well. It is just very slow healing. But you will see improvements in the first few months. Nearly everyone does.
IC is different for everyone. It is a VERY complex chronic illness which is why western docs do NOT have a handle on this and why it is well suited for a combination of easter and western approaches (by western I mean using things in the protocol that western alternative practitioners use, such as anti-fungals, probiotics, omega fatty acids, limited vitamins). The doctors that treat us have to follow our symptoms. There can be many protocol changes or you may be on more or less the same protocol for weeks. As the body heals it requires different things. Regarding juice plus, not everyone would use this product and if they did it would be later in treatment from what I have observed (I could be wrong)Occasionally something feels a bit worse for a day or 3, before the body adjuts, or feels better right after the first dose, or does not work at all and needs to be taken out. But they have been treating this a long time and the goal is to minimize bladder pain as the body heals and re-balances.
If we don't excel at health, the only other option is disease.
Hey Carey, I just wanted to
Hey Carey, I just wanted to let you know that I started treatment almost 2 months ago and I´m doing really good compared to before. I sleep through every night and I´m painfree. I started list one approx. 6 weeks before seeing Dr. Brizman and first I got worse until I quit eating grains which helped a lot. My painlevels went down with the first dose of herbs and probiotics and never came back. And I had unbearable pain, urgency and frequency, sometimes for weeks without a break. I´m not symptom-free, but I´m living again. I just started working and I even go dancing a little bit on the weekends. I also had sex a few days ago. It was surprisingly pleasurable, but afterwards I was irritated for a few hours. Some weeks ago sex was unimaginable.
Dr. Brizman told me I will be brandnew in one year or so and I believe her. She put me on list 2 after one month and 2 weeks later she allowed me to go to list 3. I tolerate everything despite the avocado. Didn´t try grains yet. Not missing them at all.
I sent many emails to former patients recently asking them if the treatment helped them to get better. And most of them did. If they didn´t it was because they couldn´t stick to the diet or stopped treatment too early because they weren´t patient enough and wanted to try something else. But even they got better in the end.
Maybe this gives you some hope. Wishing you all the best.
HI Annika- I was wondering if
HI Annika- I was wondering if you found anyone who had dilligently stuck tot the diet for years and finally got well. I am looking for someone to email to give me some hope.
Deir, can you send me an
Deir, can you send me an email inbox so I can reply to you?