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Hi guys. I'm kind of apprehensive to post this here because I know the chance of response is low.. or at least the chance of relatability is low.. but I'll take the risk. I'm wondering if anyone else has had their IC literally shift from their bladder to another body part. I'm not talking about other areas acting up. I'm talking shift further into treatment. I'm almost 3 years into treatment.. my bladder has been well for several months. In the last couple of months, I've had ear problems.. started out as one thing and then shifted into something completely different... as a lot of stuff does with us. It now feels like IC actually in my ears. All of those old IC bladder feelings - are in my ear. It's difficult to describe, but it's all of the same sensations. The same pain, the same shooting, the same rawness, the same feeling of inflammation... just in a different part of my body. I asked Matia about it, and she said "because it is." She said it's the same type of toxin release reaction, which is why it feels the same. And she said it's not doing it in my bladder because my bladder is now stronger than other areas of my body since I've been working so hard on it for a long time. But now it's just elsewhere, trying to get out of me!
Along with this lovliness, I've had CRAZY amounts of die off... more than I've had in a really long time. This is weird to me because everything I read on the healing crisis indicates that it gets lesser with each crisis, which has been my experience up until now... but this is a doozy. I've heard others talk about a "final healing crisis" before becoming totally well and balanced. I'm praying that's what this is... but have yet to actually talk to anyone else who has gone through it. I know a lot of older patients who are now well don't come to the forum anymore. I'm also guilty of this since gaining my life back... I read sometimes, but don't post much. But I'm hoping there is one out there who has gone through something similar. It is completely physically and mentally debilitating... brings back the horrid feelings and memories of before beginning treatment.
Yes, I've been in contact with Matia almost constantly.. Yes, she's working to help me through it. I'm just wondering if this is super common.. have any others experienced this type of crazy IC shift??
Hi Tinkerbell
Hi Tinkerbell
It seems entirely plausable to me. IC is a rare bird and new in the auto-immune world. Heck, auto-immunity is largely a 21st century debacle. Katie has had some things come up for her late in treatment so maybe she can put you a bit more at ease. I am 18 months in and while bladder is better, bloating is horrid. Others have had acute stomach pain after bladder improved. I find the healingnaturallybybee website (not for treatment, but for a deep undertanding of chronic conditions and how the body heals) to be interesting reading and may shed some light. Also, if there is yeast as part of your picture (which really there is for all of us) you can find ear complaints at nearly any candida forum. The last time I had SF in my protocol (yeast controlling stuff) I had really weird eye stuff happening. Did you have ear infections as a child? (possible illness retracing?) I just went through a period of loss of taste/smell which I had exactly 25 years ago for six weeks. Finally, for some of us the die off can come near the end when we are STRONG enough to manage it and go through it. What a smart body! This does not surprise me at all which is why I am so glad you are keeping in touch with M. Brizman.
Hang in there!!!! xo
If we don't excel at health, the only other option is disease.
Also, your post is a good
Also, your post is a good reminder that IC is a collection of things that represents a disease process, not entirely specific to the bladder. The body is mysterious and smart. This will pass. I just know it!
If we don't excel at health, the only other option is disease.
Thanks for responding, mimi.
Thanks for responding, mimi. Thank you for your kindness. No, didn't have a lot of ear infections as a kid. Dr M has been amazing at explaining in detail what is going on. And I've done a ton of research as well, sometimes confusing and not helpful. In any case, I'm pretty aware of what's happening and why.. I think I'm more looking for someone else who has experienced a shift like this. It can just feel a bit lonely when I don't know of any others who have been in my shoes. I know I've come a long way.. getting my life back after a long hard road. especially since a lot of my symptoms have not been the typical symptoms most have. It can just make a girl feel like a freak.. At least I know its temporary. Tomorrow is a new day.
I know it is hard when you
I know it is hard when you don't find an exact match of symptoms. We are all so unique. I think the fact that others have had wierd lingering pain should at least mirror your situation in some way. This too shall pass!! Yes, tomorrow is new! Healing is happening! Maybe this latest round of die off will do the trick!!
If we don't excel at health, the only other option is disease.
Hi Tink!
Hi Tink!
It's nice to hear from you! I can't say I have what you have but I have had weird felings in my toes and right shoulder that when I mention to Matia she really focuses on. I've also had a weird pain on the top of my head for a few days. My bladder has been very well for a long time now. I still get periods where I feel it but it is nothing that stops me from going about my day. I was never one for much die off either so maybe these things we are feeling are final stages of die off before we become completely symptom free, we can hope right!
Hey Tinkerbell, You are most
Hey Tinkerbell, You are most certainly not alone in this later-in-treatment symptoms..... You have me ...lol. As Mimi correctly alluded to, I really had not experienced die off in treatment until December and then BAM. I am still going through it- although not as intensely as I was.My bladder has calmed down exponentially. Although I will still occasionally have a rough few bladder days, it does not keep me at home. As the bladder pain has shifted away from my bladder, it has sort of gone all over for me in fragmented pieces. Certainly, my heart issues are the most troublesome and that is where my "IC" primarily resides now. Tachycardia, shortness of breath, palpitations etc. The palpitations have greatly subsides as well. As for the other places IC went- I have an extreme fatigue at times as well as muscle burning in my legs and arms. There are other factors for me- as there are for many of us such as - I had a root candled tooth removed onThursday that had become reinfected and I am still chelating from heavy metals. Geez- I sound like a mess when I read this.... Lol. I really do feel much better and so the answer to your question is.....yes, IC shifts. Yes, it is happening to others and as the toxins leave your bladder and head towards leaving, it makes sense that it was the next "weakest link".
I would love to hear some more of what Matia has shared with you as an explanation. I find it fascinating and although I am happy you are feeling better to not post often, it is good to "see" you;)
Katie
Christine and Katie!! So
Christine and Katie!! So good to "see" you both again!! :) I think you're both describing what I'm feeling... just in different parts! It does seem that she's focusing more on these other things rather than the bladder now.. She still asks about it, of course, but we mainly talk about the other stuff during appointments now. Strange how that happens. I remember in the beginning of treatment, thinking to myself that I could handle ANYTHING else but the bladder stuff! I still do stand by that, but this ear thing has really thrown me for a loop! Especially since the feelings are so so similar to those of "bladder IC." I've had my share of mental freak outs over it.. post-traumatic fears and those old anxieties returning to the surface. Didn't know what was going on for awhile until we were able to figure it out, and it's so good to not feel so alone!
Katie-- That's exactly it! I think you describe it perfectly. It's like the "IC" goes to the next "weakest link." I think the "IC" reaction/feeling is the lymph releasing built up toxins and junk. For me, I know that my next "weakest link" head/sinuses. I had a MASSIVE sinus/mucus die off about 18 months ago.. was hoping that was IT. But my body had other ideas. I didn't expect it to get to my ears since I never had ear problems in the past, but I guess they're all connected so.. I guess it makes sense. And this is pretty much what Dr. M was explaining to me. She said that I've worked so hard to strengthen my bladder, that the toxins are being pulled away from my bladder now, as it's no longer the weakest part. (a good thing.. but annoying too since it's not so predictable!) So instead of the lymph releasing toxins in the bladder area, the lymph around my ears is now releasing those toxins. She says it's the same reaction that happens in the bladder, it's just happening in my ears now. I also have the same types of feelings in my head. It's very odd to describe. Not a headache.. but another "IC" type of pain. Like shoots of pain, as if my head were being squeezed in a vice. My head/ears thing started out as a cold virus I picked up in February. It shifted to the ears in early March. She treated it as an ear infection, it went away for about a week, then BAM! Back again and never left. I didn't get ear infections as a kid, so I'm not really sure if it feels like that or not?? But I do know that the lymph releasing can mimic symptoms of illness.. so I guess so. After all, that's how the healing crisis works, right? So I KNOW this is a good thing, as much as it does suck.. and as much as I just want to poke a hole through my eardrum to release the pressure and dig out the inflammation with my fingers! But it just has to happen.. the lymph just has to release the toxins and get rid of them. She's helping me with trying to redirect the energy back downward, away from my ears since it's so painful. The last couple of days, I've had a couple of bladder sensations, and I'm actually welcoming it!! As strange as it sounds.. hoping it is moving downward away from ears. A shift is good, I feel. I'm just hoping for more shifting, and hopefully moving it out! For good!
I'm also so happy for both of you beauties that your bladders are doing much better than before! It really is such a wonderful feeling! :)
Hey Tinkerbell,
Hey Tinkerbell,
As awful as this is, I really think it's a good sign! I've been reading "The Healing Crisis" and what you're going through sounds so much like what I'm reading about in the book when someone is about to break through. Also, my cousin who went through Matia's treatment, had the worst bladder flare ever right before she broke through and her bladder/body got healthy to where she didn't need to be in treatment anymore.
I am actually looking forward to when things started shifting again more in my body. It seems like any die-off I have lately is really minor, and my bladder/vv symptoms have gotten worse lately. It's all part of the push and pull as Matia calls it. I'm working very close with her and taking detailed notes everyday, so I will get there. :) We all will.
LIsa- I am doing much worse
LIsa- I am doing much worse right now too. I am having the awful nighttime flares almost every night. Very scary and hard to believe it is part of healing. I am still very confused. I went through a better period up until the end of March and since then have been worse and worse.
Lisa thank you!! This is
Lisa thank you!! This is really helpful. Thank you for sharing about your cousin! That is so awesome. I do hope that is what's happening! I've also been reading "The Healing Crisis" again.. and again. I had a lot of die off in the very beginning. Then again from 8-14 months. Ever since then, I've been like you.. smaller amounts but nothing too intense. I'm hoping this is another level.. I'm confident it is. It's really good to hear about your cousin's "final crisis."
ps- sorry I ignored the OT.
ps- sorry I ignored the OT. Tinkerbell- ear stuff sounds nasty but like all have said- sounds like a step in the right direction
Tink
Tink
Here is an interesting tidbit. I always find it helpful and reassuring to read from other healers, even if their approach is not exactly the same as ICAMA. They are in the trenches and I often trust their observations
http://www.healingnaturallybybee.com/articles/heal11.php
If we don't excel at health, the only other option is disease.
great article! I also love
great article! I also love to hear from others experiences.. especially others who are also "in the arena." Thank you for sharing this.
Oh, and tink did you read
Oh, and tink did you read this one?
http://www.healingnaturallybybee.com/articles/heal10.php
If we don't excel at health, the only other option is disease.
I WANT to believe this is
I WANT to believe this is what is happening with me but when I ask Dr B if I am having healing crisis she says, NO- it is just that we haven't been able to unravel my inflammation yet- THAT is why I am such a scared person. I desperate;y want to cling to the idea that I am worse right now because my body has something to work out. Maybe?
Hi Tinkerbell! I have had IC
Hi Tinkerbell! I have had IC in my stomach the same raw burning sharp pains as I get in my bladder from the beginning. Stomach always worse in my stomach then in my bladder, but obviously as we know IC starts from our gut. I don't know why though my stomach has an continues to be so bad for me? Why doesn't everyone have stomach burning preceding IC? Dr. M says she is having a very difficult time figuring out my imbalances and unlocking my inflammation, but know we have to be making some headway I know we aren't back sliding just feels that way sometimes. This sounds like a good shift and a healing crisis as you describe. I have only maybe a little die off here and there. Don't feel alone in this it sounds like many of us have inflammation in many different areas and we are trying to peel back the layers and layers of inflammation. It is all crazy making!
Christina- between the two of
Christina- between the two of us, Dr B has a lot of work to do! AGH!! But You are right, there has to be headway being made even if it doesn't feel like that.
Yes Deir that part about
Yes Deir that part about getting your body all the nutrition it needs so that it can heal is important part of the untangling too.
If we don't excel at health, the only other option is disease.
What do you mean, Mimi?
What do you mean, Mimi?
I just think that the
I just think that the untangling that Dr. Brizman does with all patients (obviously some easier than others), has to do with helping the body get what it needs at the right times-when it is ready to utilize these things. Hense her post regarding "dosing". At the right times, the body can carry out all its detoxifying and repairing. In her personal story, Bee Wilder writes that after she erradicated her candida, (took over 2 years) with food and supplements, she still had to do all the repair work.
"What I went through to cure my yeast overgrowth (called Candida), which was located throughout my body, was an extremely difficult but worthwhile journey. At one point during the first year I was losing 3 pounds a day and could only eat nine foods in the whole world; everything else came back up so I had no choice.
I was almost totally bedridden by the tremendous fatigue, muscle aches and pains, gastric upsets and pain, and many other symptoms. Finally after 2 ½ years on the yeast program I was completely cured of candida. However, it wasn't easy because I found many things on Dr. Crook's program didn't help, so I went through a lot of trial and error during that time. At the time I didn't know that even though my candida was cured, my body still needed to be repaired and rebuilt in order to be completely healthy."
http://www.healingnaturallybybee.com/articles/heal13.php#a3
http://www.healingnaturallybybee.com/articles/foods40.php
If we don't excel at health, the only other option is disease.
SOmehow I feel like I am
SOmehow I feel like I am being corrected but I am not sure in what way or for what. LOL
LOL not sure I follow you.
LOL not sure I follow you. Was trying to add that as time goes on even tho it seems little progress is being made, all the good nutrition is changing your body in ways you can't see yet and this will hopefully help Dr. B with the untangling. Your hard work is not wasted. Was what I was trying to say.
If we don't excel at health, the only other option is disease.
Oh- ok- Thanks! I hope you
Oh- ok- Thanks! I hope you are right. I know all of this information and I used to be the one telling people this but my outcomes have been so dfferent than I or Dr B ever expected. It is very very difficult for me right now. My mind is all over the place to say the least. I have an appointment tomorrow so I am hoping I get some clarity.