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Hi Ladies, it has been many months since I posted. I have not been treating with Matia. I never had the courage to really start due to lyme disease and pain getting worse everytime I tried.
By treating lyme and co-infections with herbs, I got to about 80% better by September this year. Very low pain or symptoms and 50% of my days being totally symptom free). :D
But then got talked into a stupid move of doing a "detox". I thought that maybe it was what I needed at that point to get me to the 100% BUT that was a mistake because the toxins were dumping into my newly healed bladder and burning it like crazy. The detox "specialist" I was working with had healed her IC in this way and she kept telling me to push through the pain - another STUPID idea. I did this for two weeks and it was a disaster, I quit and went back on list 1-3. I was getting better and then a huge disaster happened. I was in my car and backed my seat up and then heard a crushing sound and smelled a familar odor of men's body spray my 14 yo son uses.(GOD AWFUL "AXE") I got out of my car and then saw I had crushed the aerosol can and I had to pry out the pieces. The can and the chemical got all over my hands. The odor was so strong it was making me ill.
That night my bladder went crazy. It burned like fire and didn't stop. I could taste the chemical in my mouth- it was awful. Every time I got in my car I would get a headache. IT really sucked. That was 2.5 weeks ago.
The reason I am writing this in this forum is that I still have not recovered. I do not have much of the frequency or pressue or urgency but I have what feels like to be a chemical burn on the wall of my bladder. This is totally new to me.
I know Ally had months of burning. Wanted to know who else has this and what did Matia tell you to do to get better? I don't think I can do a consult with her at this point since it has been so long since I spoke with her. I would probably have to start all over and probaby then get passed to Boaz.
I am worried that I have some permenant damage. Can't believe how bad it feels. It comes and goes and I have had a couple of days where it seemed better but I can barely eat any foods beyond the blandest of bland. Thinking I might even have blisters.
I know there are many here who are suffering. What do you do with this feeling? I have never taken any meds for pain and I don't want to start now.
Any ideas are so greatly appreciated! I hope everyone is healing!!!!!
I am also having a very tough
I am also having a very tough time with being so pissed off at myself for wrecking my progress. :(((((
Oh Samara!! I am so sorry!!
Oh Samara!! I am so sorry!! I don't have Lyme, but I feel I can relate to what you're saying on several levels. First... when I was in treatment for about a year, I had some terrible die off in the form of throat/sinus mucus stuff that very much resembled a bad sinus infection and caused me to have issues breathing (mucus getting stuck in my throat, making it feel like I couldn't breathe). Anyway... after months and months of that, even though Matia was helping me through it, my primary doctor (assigned to me by my husband's insurance) sent me to an urgent care clinic. When I went, I was very open and clear with the doctor there about my IC and what I was and wasn't willing to do as far as "western" stuff went. This doctor made me feel very comfortable, telling me that she had also healed herself naturally of IC, and she was now doing fine. Because I was in a very vulnerable place, I trusted her and took the medications she gave me. HUGE mistake. Not only did they NOT fix my sinus/throat problem, but the things she had me do just made my IC much worse, which was more reversal that I had to do with Matia. But... I will tell you that even though that thing happened, hope was not lost and it didn't take too long to get back on the straight and narrow with Matia.
And... I TOTALLY relate to the chemical burning bladder pain. This describes my beginning stages of IC. I never did have the frequency or urgency typically accompanied by IC, but I had the burning pain. It felt like the inside of my bladder was on fire. This was one of my first symptoms to get better in treatment. It can get better!! I don't think this is permanent.
Is it possible for you to get into treatment with Boaz? I have heard such wonderful things about him. I don't think you should look at it as "getting passed" to Boaz. Matia has trained him, and I don't believe that he would take on patients if he wasn't equipped. I've heard all good things about him. Have you considered starting up with him?
Thanks Ladies, I may do that.
Thanks Ladies, I may do that. I do feel like I have knocked back so much of the bacteria. This is a struggle in a world filled with pollutants. They may not make me fly out again since I went once. Boaz has a great vibe. I know I would be in good hands either way. Thanks again. It is getting a bit better but I think I did set myself back quite a bit with my healing.
Samara, how long ago did you
Samara, how long ago did you have an initial appointment? If it was less than a year ago, you may still be able to get in with Matia. I know that patients are still considered "on the books" until they haven't had an appointment for a year. Lynn was telling me about this a couple of weeks ago. You may want to call the office to ask her. I think they get back into the office on Jan 7?
I did my initial appt with
I did my initial appt with Matia Oct. 2012 but I did another appt with her last spring. I have tried to start many times and had so much addtional pain that I would quit and go back to the lyme regime. BUT, now since being severly exposed to this chemical, I am in ten times worse pain than I have ever had- so maybe it is a good time to start. (Btw- AXE Men's spray has put many people in the hospital- it should be illegal. I have now banned it from my house.)
I believe that I am experiencing the true pain of IC now in which the lining of the bladder is raw. I never had that before.
I would be happy to work with Boaz too. I'm not sure it matters at this point. But, if I cam going to call them again then I need to make sure I commit. I have avery poor track record with the commitment part.
My biggest issue is the lyme and mycoplasma etc. I feel I need "big guns" to knock those out. I also have thyroid issues. If I start with them then I am going to be on pain meds at the beginning to get me through. I have never taken them but this weekend in particular have had more pain that I can bare. I guess that is the next question- what does Matia approve for pain?
Thanks for the support ladies. This has been a tough road. I think all toxic chemicals need to be eliminated form this world. We are literally killing ourselves with this stuff!!!
Hello Samara,
Hello Samara,
I have never tested postive for Lyme, but all this madness in my body started with a tick bite in NY, where I used to live. The classic rash, and a six week round of Doxycycline. That was the beginning of a decade of my body rebelling in many different ways. Thyroid, immune system, hormones, tummy, brain fog-oh, the list went on and on. So, I am not sure what happened with that old Lyme bacteria, but I know heavy rounds of antibiotics did a lot to my system, too.
I really believe that there are bugs in our system that we need to kill, either way. The problem is the Western model supresses the immune system, too, keeping us in a doom loop. Destroys our bugs AND US! I have come to believe that this Eastern way, though not perfect, is the only way that works because it addresses imbalances and fights the bugs without destroying our immune system and throwing us out of balance. Slowly, slowly, very very frustratingly slowly, we see improvement.
I feel like after a decade of suffering I am getting off the roller coaster. I still have wacky symptoms and my bladder still flares from hormones, and other stuff I haven't yet figured out. But my body is definitely simmering down after 4 months of treatment.
Also, I was originally scheduled with Matia, but I procrastinated and by the time I signed up I was put with Boaz. BOAZ IS WONDERFUL. At first I did not trust him because of my own issues with men-but actually I think this became part of my healing process! The universe is mysterious this way.
Please give this way a chance. If we commit 100 percent I believe miracles can and DO HAPPEN.
And Boaz is a kind, available, loving man who is commited to our healing.
Just take baby steps with this protocol and before you know it you will feel better!
Much love to you!
J