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Hi all, just wanted to post because I feel low and I've tried pouring my heart out to my family, bless them they do try but they just don't understand. I'm not really looking for sympathy or pity, I just need to let it out before I go crazy or more crazy should I say! I guess I need some encouragement, again. Sorry to be annoying and moany. I find that I very quickly tend to forget the positivity that's needed and instead indulge in negative thoughts and questions and just round in circles trying to figure what's happening in my body and that's so draining. I go through periods of obsessing over finding a solution or relief. I need to snap out of it and deal with it slowly, with patience.
my mind won't stop thinking about this condition. I started off so well with this treatment and because I could see results I was happier and positive. Now, seems like I've hit a wall that sometimes pushes me back and won't let me progress. I'm so irritable and unhappy. Whenever I feel the slightest improvement I get so happy and as soon as I feel it's gone back to rubbish, my mood changes with it straight away. I go through this several times in a week. Lately, what seems like an improvement isn't really because it doesn't even last a day. At the next toilet trip i'll feel the horrid burning go up and then pow! Happiness gone out the window. I'm suffering from vag burning/soreness which has been up and down in intensity for the past three weeks. This isn't something I complained of before treatment and now it's my focus. I spoke to Dr B and he said it's part and parcel of it. The body is going through cleansing. It's not that I don't trust this treatment but it's hard to think of this as a good thing when I'm in pain 99% of the time, especially if I didn't feel this before.
On top of this I'm surrounded by family who love indulging in desserts. I even snapped at them because I had had enough!! I felt so bad after. I don't want to miserable, moody or irritable. I just want to be normal, healthy. I want to be pain free, symptom free. It's just one thing after another :(
Just want to say "vent away"
Just want to say "vent away" Sometimes a trouble shared makes it half as strong. I think I can relate to almost everythign you are saying.
I can totally relate. Went
I can totally relate. Went through months of this. Now the downs are much less downs and the ups are very good (I feel normal and don't think about my bladder) so it does get better! Also just a side note. Can you ask your family not to indulge in sweets around you??? If they can't then they clearly are sugar addicts and you might make that observation to them :) can you share anything you have learned from them? Sugar feeds cancer and heart disease. It is a silent killer. I can't help myself in this area. I have to educate. People are really badly addicted and it is so annoying. Please continue to vent. FedUp (the website for the movie) has a 10 or 21 day detox. Anyone can do this. If they can't the are serious addicts
If we don't excel at health, the only other option is disease.
I can't wait for a better
I can't wait for a better editing feature here. Can you share anythign you have learned about sugar WITH them? is what I meant to say
If we don't excel at health, the only other option is disease.
Honey, I totally feel your
Honey, I totally feel your pain!!!! I'm sure that is why Boaz stressed in our first appt. that he will be treating the cause not the symptoms because we ALL at some point question whether we can prevent the symptoms or cure them by doing something different. I'm going through a tough time right now too after several weeks of a good patch. It is so difficult to not allow your mind to race in the wrong the direction because our entire lives have centered around treating the symptoms and putting a bandaid on them. This treatment is so different that even my friends that wholeheartedly believe in the natural approach don't get it. Why in the world would the renowned Coconut oil be bad for me :) I'm so thankful for this forum, our doctors and ALL of you. I think I would have lost my mind on many occasions if not for the support I get here. I'm 6 months into treatment and have had quite a few ups and downs which are very common as I understand it. Don't give up!!! We WILL overcome this!!!
Thanks Patty :) I really
Thanks Patty :) I really really hope you get back to a good place very soon. It's so nice to hear when people talk about feeling good..after all it's hope. It's great that you were even experiencing a good patch after only 6 months...keep thinking that :) I try to keep in mind two good days that I had weeks ago lol but gets impossible as the pain gets worse.
Nevertheless, we will get through it. What goes up (high pain) must come down!!! Xx
:) I've tried to educate but
:) I've tried to educate but they think I'm having a go just because I can't have any (which to some extent is true). I know though, after going through this horrible experience, I wouldn't be indulging like them. I won't say that I never will because I probably will occasionally have a homemade treat but certainly would think 1000x before eating a whole tub of ice cream!! (Yes, I could finish a Haagen das tub easily before). In fact nowadays the flavour of freshly baked almond croissants makes me feel sick as I pass a bakery on the way to work in the mornings. It'll be interesting to see what I would think if it was in front of me!
would you say hitting a plateau is common? What triggers more improvement?
Time, patience, trust,
Time, patience, trust, deligence, hope, is what I try to manage. But it is not easy. Any of it! You are a great writer, so maybe journaling would help!! Are you near your period? Being down near your period is also very common with IC. (Depression, i mean,. And it can be SEVERE)
If we don't excel at health, the only other option is disease.