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My husband said he thinkshe's having die-off. I said um no. You are having a reaction to the cookies and milk you just downed. Haha. He would never survive in our world. Have a great night.
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He and Matt could be great
He and Matt could be great friends. Lol.
My husband thinks he's
My husband thinks he's "definitely got fully-blown" what I had, only worse.
I want to laugh, and yet I do
I want to laugh, and yet I do find it sad that despite what we have been through, they are not effected in a postiive way. Hope it changes over time. My husband shuns sugar, except about 6 times per year. He does not eat fruit either. Now if he would just cut back on the wine. Baby steps.
If we don't excel at health, the only other option is disease.
Mimi, I know what you mean
Mimi, I know what you mean but I think that perhaps they are using humour as a coping strategy. I can imagine in a few years' time, we'll know the emotional toll that partners of people with this horrible illness undergo much in the same way as research is now looking at partners of cancer, etc.. Hubby and I had to adopt a very jokey approach to all of this; otherwise, we would have drowned under the impact. I think that there must be some strands of positivity for partners of people with this illness - but perhaps they are several years down the line! I know that I am certainly a long way of finding anything positive in the whole situation - and I often wish that I could be more magnanimous with myself and find positivity in my situation... but I can't (yet). I think my life would be easier emotionally if I could 'turn the other cheek' and reach acceptance. I think I will eventually - but it'll take a while.
Vin, you are sooo right. You
Vin, you are sooo right. You know I've been going through a really rough patch and sat down with my husband for a talk. I hide as much as I can from him because he worrys about me and because I'm honestly ashamed sometimes about how I'm not dealing well. This last ordeal has made me realize that is not healthy for me. I told him I was going to be more honest with myself and him about how I'm feeling. It's ok for me to say sometimes I can't go with you because I just don't feel good today. As we talked he gave me the greatest love and support. We crossed a hurdle instead of building another border. He told me "I joke sometimes with you about it to try to lighten things up but I am very proud of you. I don't know if I could get through this and be so committed like you have been". Boy, I felt such relief....to know thats how he really feels instead of being sick of being around me.
Patty,
Patty,
That's brilliant. He sounds like such a lovely man. I too felt like a burden for so long - but of course that's completely the wrong way to look at it. Just keep plodding on. That's what I am doing - and it's working.
Me: I am getting these weird
Me: I am getting these weird red spots on my legs. Do
you think it is die off?
My Husband: Not everything is IC and die off related. We are just getting old.
We both started laughing. Gosh, I needed that laugh. :)
LOL!!! Yeah Boaz asked how
LOL!!! Yeah Boaz asked how my focus was and I said "I am 56 years old...what should my expectations be?"
Vin, I really appreciated
Vin, I really appreciated what you said. I DO think humour is important. My husband and I are hanging by a thread through all of this. It has taken a BIG toll on our marriage, not to mention that I had low libido and OCD BEFORE my main IC symptoms hit, and that had an effect on him too (I would obsess about things-a new thing every few months!!).
Patty, just shows you how different we all are. My husband VERY rarely asks me specifics about treatment. I have never discussed die off with him! LOL
If we don't excel at health, the only other option is disease.
I'm sorry Mimi. We are ALL
I'm sorry Mimi. We are ALL very brave and trying as hard as we can to get well and we all deserve support from our loved ones. He is the only one I get it from but I am thankful for him. I also 100 percent understand how adversely it can effect them as well. All we can do is our best right? p.s. Part of the fear I am re-living goes back to my ex-husband whom was never understanding about health issues and always told me they were all in my head so I have been in bothcircumstances. I wish you the best for YOU!!!