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Hi Guys,
I'm very much in the latter stages of treatment and generally have no symptoms most of the time now but to this day "proper" exercise (I'm talking an hour in the gym with some time on a cross trainer and doing some weights and sit-ups) makes me feel a little flarey afterwards. Does anyone else have this? I've kept it really light most of my treatment and just mostly done walking and some very light easy yoga. Decided to step it up this week and start training properly again and I'm definitely feeling a bit flarey again... just a bit irritated in the bladder and having to pee a little bit more often. Does this ever go away and get to a point where you can exercise again properly?
I am not doing as well as you
I am not doing as well as you ubut for me a little better. I did a TINY bit of dancing at a rehearsal Friday night and flared afterward. This is very frustrating for me as thi saffect s sffects my career! I miss really moving so much but I would assume like everything, it will improve eventually.
I keep trying to add in more
I keep trying to add in more exercise too, although I don't know where I am in treatment. I have low bladder sx but still have bloating and joint pain. The joint pain is not severe but it keeps me more conservative in my exercising which is super frusting as I have put on a few pounds and I used to be a fitness instructor. I don't feel ready to go back to classes, but I do a class at home
Your post has me wondering though about how much my excersise might make my symptoms a bit worse. I need to pay claser attention. It of course makes sense. Our lymph was backed up for years, so yours is probably not totally clear yet, even though it is generally at low enough levels not to bother your bladder. I am assuming you are drinking lots of water.
Maybe try cutting your cardio in half and lower the intensity of you workouts
Also, as a side note, as a fitness instructor, I am really not a fan of sit ups. It might be interesting for you to meet with a trainer or look on line and search for exercises that allow you to use your transverse abdominus (you body's corset muscle). It think traditional situps can create problems. Especially for people with pelvis challenges like us! Here is a link to bodyweight progressions. Using ONLY your own bodyweight to build strenth and tone, strengthening the connective tissues at the same time. Weights stress the body a lot more. Using you own bodyweight is more natural and progressive. By starting slowly and not using free weights or any weight machines, you are not taxing the lymph as much! You can also do it ANYWHERE. For us, the key is to go slow. That is why I really like this program. This is a funny-looking, but AWESOME website that talks about bodyweight conditioning. Here is a beginner workout. He works the abs without EVER doing a traditional sit-up. Look at his poster on the right side bar. You have to click on it and enlarge to see all the exercises. Also look at his website by type of exercise (push-up, inverted row, etc...) because he breaks down the exercises to give you the safest ones to do first. It is important not to progress until you can do 3 sets 8-12 reps comfortably. And do a rest day in between. I have been able to do these exercises without a lot of obvious stress to my bladder but I am at the beginning of this. For anyone reading-this is for later in treatment and please ask Dr.
http://www.startbodyweight.com/p/some-sample-custom-programs.html
http://www.startbodyweight.com/2014/01/basic-routine-infographic-poster....
http://www.startbodyweight.com/p/exercise-progressions_12.html
If we don't excel at health, the only other option is disease.
Thanks Mimi! Will definitely
Thanks Mimi! Will definitely check this out. I think I remember Matia saying to me that (as you said) exercise can rattle the lymph nodes and release toxins which the irritate the bladder. It can also release things like lactic acid which irritates... I just thought I would have been far enough along by now for this to be better but I guess I still need to take it slow. Do you think things like reformer pilates would be fine?
Regarding Pilates, I think
Regarding Pilates, I think per Dr. B to just check in with your body. Try to only work with a neutral spine and when sitting at computer, etc...always sit on your sitz bones (not your tail bone). Pilates and barre work are notorious for putting the spine in constant flexion. I had a PT tell me before I started treatment that she sees a LOT of people that have IC that are also Ballet Barre (pilates too) enthusiasts. Not sure how scientific that is. But beware the c-curve type exercises and keep your spine NEUTRAL, otherwise you are chronically shortening the pelvic floor muscles which impedes lymph flow through the pelvis. Hense the need to avoid sitting on the tailbone (think, slouching, sitting on super soft surfaces like couches a lot, etc...). I even put a towel roll at the back end of my car seat so I can sit more upright in my car- the towel goes not on the seat-back, but actually on the seat itself, so that your stitz bones rest on the towel and it makes the car seat a true 90 degrees). I would say PM me if you have more questions, but GRRR no PM function here yet :)
If we don't excel at health, the only other option is disease.
Thanks Mimi. That is super
Thanks Mimi. That is super interesting.
Miss CC, I was doing a little
Miss CC, I was doing a little more research. How much "cardio" are you doing, v. resistance training? This can make a difference.Cardio is very draining and not as effective for strength, stamina and anti aging as short burst or high intensity interval training (only a few minutes per day) and resistance training a few times a week. Like, if it is done right, I am talking 15-20 minutes, 3 times per week, no gym required. Too much cardio with the heartrate up may not be good for us.
If we don't excel at health, the only other option is disease.