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It has been 6 1/2 months since my 24/7 urgency started....I CAN'T take it anymore! It hardly ever goes away! I'm so tired and emotionally drained. I go to see Boaz in July...I've already started the diet, and was on the regular IC and candida diet for a few months before that...not even sure if yeast was an issue, I just wanted to give it a shot. Some days, the urgency lets up a little, but most days it's just absolutely dreadful. I recently found out I have low estrogen and progesterone....after reading Matia's blog post the other day, I realize that low estrogen can cause urgency. I just want this to go down a little! I have to take something to fall asleep right now because otherwise I just lay there and think about how I feel as if I have to pee. I cry ALL the time....I don't even know what the right path is anymore. I want to just give up. I want to go to sleep and not wake up until I feel better!
I think a lot of us have been
I think a lot of us have been there at some point through this journey, don't give up things will get better. I have been in treatment 2 1/2 years now and so much better, I could like this if I had to, though I won't have to as I plan on getting 100% better. Things take time with this protocol and everyone is different, some heal quickly and others take a lot of time.You can heal from this, it will just take a lot of work and discipline to keep going through the rough patches. The rough patches eventually get less and then you will have more and more better days.
You wull not always feel this
You will not always feel this way- physically and emotionally. Things will get better. I have often had teh feelinglike I need to pee at bedtime thing. It is maddening, I know. On those days (which I have MANY MANY fewer now!!!) I use every relaxation tool I have. Counting down from 400, saying the Rosary, progressive muscle relaxation, at times, I would listen to soothing affirmation cd's. WOW! I NEVER need that anymore. Heating pad helps- not sure if it literally takes away pain/pressure or it is just re-focuses my thoughts on somehting other than the urgency.
I understand your desapir. IC is impossible sometimes and yet, we get through it one day at a time. xoxoxoxoxoxo
I am so sorry...I know this
I am so sorry...I know this pain. I had IC a
Year and a half before I saw Dr. B. I have been with her 2 1/2 years now. It was and still is the best decision I could ever make. This last year has been my best year. I kept a journal of my good days...at first there weren't too many. But eventually I could put several side by side to see what was working for me. I also read everything I could on this site and many other sites as well to educate myself. I still try to keep learning and improving. I am grain free, dairy free, nightshade free, and absolutely no natural sweeteners other than applesauce...this is what I have found works for me coupled with lots and lots of veggies, some red lentils and some navy beans for starches with lots of protein and some nuts and a little fruit. It's a journey though with a lot of learning along the way as your body shifts towards healing and you can add
more in. I am so excited for you to begin soon and see some of these wonderful shifts in your body. Love and hugs as you get closer.
Thank you all for your kind
Thank you all for your kind words! My biggest concern right now is my constant urgency...it prevents me from enjoying everything! It's always on my mind, and it never goes away. I feel like I could cope so much better if I could just have the urgency get better...it keeps me from focusing on anything. My frequency isn't too bad...I actually feel since I started the diet, it's gotten better. I am so afraid to be in this treatment for years! I just turned 30, and I want to have babies! I know, I'm just very overwhelmed right now, and thinking too far ahead. It's easy to let our emotions get the best of us. I just want some relief....I'm counting down the days until my appointment!
Hugs to all of you!
Brittany