Success story

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My name is Jeanne Townsend and although I wrote a success story a couple of years ago, I realize that it has not been included in the archives. So at the request of a fellow IC patient, I am more than happy to relate my story and perhaps give more hope to many of you out there trying to make sense out of this difficult health challenge.

My story goes back five and a half years ago. It was in the winter. I got what I thought was a UTI . I did not have a history of bladder infections at all. I think in total I have had about 6 and I am 56 years old. I went and got the antibiotics and thought that would be the end of it. It wasn't. A couple of weeks later symptoms came back.I went to the doctor, still high bactierial count so more antibiotics. I think I went through at least four courses of two different antibiotics. By now the cultures are not showing anything, but symptoms are still there. I never had the burning pain upon urination that I remember with other UTI's I had had in the past. My symptoms were urgency, frequency, and low pelvic pain. I was miserable.It continued on and off like this for months.
I ended up seeing at least eight doctors. three internists,two gynocologists,one gyno-urologist and two urologists.There actually could have been more because of the HMO I belonged to, you could make an emergency same day appointment and see someone different each time.
I got my first clue that what I had was IC from my best friend's brother who is an internist and brilliant diagnostician.He said,"Jeanne, it sounds to me like you have something called Interstitial Cystitis, or IC".
Well, I couldn't pronounce it ,let alone have a clue to what it was.Now came the internet. What a shock! The symptoms that so many described fit.
I was actually devistated and depressed.......and in pretty constant pain at this point. I found a urologist that said that he thought I had IC as well.
I had many tests to rule out other possibilities, but as you know there is no deffinative IC test. He said that there was no cure and that what he could do was try to control my symptoms.
Now, the only way I could deal with this was to research and educate myself as much as possible. I joined the ICA and got all the literature. I searched the internet daily. It was there that I came upon a site. icaroadto recovery.com. I was excited about what I read, and there was hope there!
I called immediately to make an appointment with Dr. Brizman. I had to fill out an extensive questionaire and wait three weeks for my first appointment. In the meantime I attended a support group for people with IC. Everyone was very nice and discussed what treatments they were doing.
I myself was on three medications at the time experiencing very unpleasant side effects. I said I was going to try an alternative approach. This was not the path for anyone else at this group. The level of suffering and disability there was difficult for me to see. I promised to return and share with the group if I had success.
My first meeting with Matia was great. I started the diet and herbs and felt some improvement actually pretty quickly.Although it would be a long time before I had sustained wellness. My case was quite complicated and it has been a long road of ups and downs, but I have my life back! I don't need to sit on the aisle seat anymore,or worry where the bathrooms are.I still am on a modified diet, but I eat out everywhere. I enjoy my life and you will too! I never thought I would feel the way I do now from that first day. I have been almost bladder symptom free for several years now. Thanks to Matia's dedication and support.
I hope this story helps you have a little more hope! Don't give up .Stay with the program. You will get better!!!!!!!!I will try and share more here on the site and in workshops.
My heart goes out to you all!!

Jeanne

emmarenee's picture
emmarenee

Thank you for sharing your story. Reading stories like these really does bring me comfort. My story is very similar to yours, as far as symptoms go. I had three back to back UTI's in a 4 month period. The last resulting in the urgency and frequency not going away by the end of my antibotics.  I fould the ICaRoadtoRecovery website within my first week of symptoms and that led me to Matia. I started the diet immediately. That was 4 months ago. My symptoms have improved on the diet by 90%. I am able to work, which is something that was extremely difficult at the onset. I have my first appointment with Matia on October 28. I will be taking my daugther with me as well. She has been having symptoms that I feel are warning signs and I want to get her on the path to wellness. We are very excited to be taking this trip together and to finally meet Matia.Tammy

jeanne's picture
jeanne

Tammy,

I wish you the best of luck! Making the journey and seeing Matia will make a positive difference in your health and in your life.It sounds like you are already benefiting from the diet. Great!

All the best,

Jeanne

ICHope's picture
ICHope

Thanks for your story. Each success story lights a candle in the darkness. Its heartening to read the phrase "I have my life back" - so many of Matia's patients say this - which gives tremendous hope to those of us at the beginning of treatment who look forward to the day when we can say this.