Should I travel to CA and get started? Need opinions please

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Hi there everyone. heer is my shortened story. In November, i thought I had a UTI. I took d mannose and cranberry and it "went away" only to return 2x briefly. Then on Jan 16, it cam back and never left. I was dx with mild IC. My symptoms are constantly feeling llike I need to pee plus varying degrees of crampy discomfort. I also have itching on my vulva. This has been the worst 3 months of my life even though I know I am not close to as severe as some. I have been researching and reading so much and I klnow that Dr brizman's approach is the way to go but.... I live in Philadelphia and have 3 kids including a baby so it wouldn't be easy for me to get to CA. I have already altered my diet extensively. I eat almost no sugar (only a tiny amount of maple sugar) no gluten, corn and very little dairy (only butter)none of thh other common IC irritants of course. I am going to acupuncture and chiropractic allergy reduction (NMT) I have improved- although it is small- but definitely improved in the past 2 weeks especially. My only other health issues until now were hormone related- Infertility and PMS. I treated myself with herbs. This time- I can't treat myself.The idea of having everything looked as a whole picture sounds fantastic and what I have been searching for. I am totally game for any major changes she would suggest.

What do you think- should I make the trip? Wait and see if I continue on this improvement path?

Also- I am still nursing- will Dr B treat me with herbs?

DLFox123's picture
DLFox123

Hello, I honestly feel that you will never regret seeing Dr. B.  I too took a leap of faith.
 Sometimes I think that life gives you an answer, that you stand in a certain spot for a certain reason; it then becomes up to you to accept the gift or turn your back on it.
As for the nursing - I'm WAY past that - sorry, not a clue. 
All my best,

gabrielasil77's picture
gabrielasil77

Sorry to heard about your IC, but Im glad you have find Icama to address that.
Dr brizman is one of the kind., you wont find any Dr like her. I find ICAMA 2 years ago but I decided to go with conventional medicine, seems other urologist the ones my insurance will cover. but guess what? nothing work for me, I got done more then 50 instillations, and 3 dylations and my progress was minimun. so I decided to go and see Mathia. Luckly I just 2 hrs away (with traffic) money was a big issue  still is. but I decided to make the extra effort.
My treatment is just starting, but she have tons of experience, she very patiente, and really look into your symptoms to address you case individualy. 
If you are going to do this, you need to be  100 % commited. diet is hard, is very hard, but is worth it 100 x more is for your own good, and if you think about it make a lot of sense.
 Just think about it. but if you know is 0 sugar, go 0 sugar then... is hard but not impossible. She did it we can do it too. some times one single twist in the diet make the whole difference...
I hope and I wish you a very quick recovery.
Talk to you soon
 

Christine222's picture
Christine222

I had symptoms for less time then you. I had what I thought was my first uti at the end of Feb. It never went away. Saw a gynocologist to rule out a few things. Was afraid to see a urologist because I did not want any invasive tests. After reading about IC and how devistating it can be for people, I knew I did NOT want to go down that path. The path of not getting better, only getting worse and trying to find the right combo of drugs to make my life livable. I found this website and read all the success stories and realized this was the path I wanted and needed to follow. I made an apt. and booked a flight. I am in Atlanta so I know how hard it is to fly across the country for this but I decided that my health was worth it. My apt. is in 10 days, and I can't wait! I don't know about nursing being allowed during treatment but I would think it would not be ok while supplementing with herbs. That's something you could ask about when calling. I know in my situation I am glad I made the decision to get treatment because I know this is not going away on its own. The diet is helping me a lot already. Good luck in whatever you choose.

Carola's picture
Carola

I have the same problems as you have apart from the itching.
It was very bad as well, i saw some doctors everything made me much worse.
I have to kids and one comming up, it's not good at all now, but that is partly my own fault(diet).
When i went to CA i had one boy of 3,5 and one was not a year yet, so it was hard, but i took my mother in law and did it.
I live in Holland so that's far away, nearly 24 hours travelling.
But it's all worth it, i did give up hope many times, and still do, but Matia always gets me back on the right path, it's hard but worth it.
Please get yourself on the plane.
Goodluck
 
Carola

Shelby's picture
Shelby

Hello,  I've had IC for two years and I've been trying to go it alone for two years.  I've tried everything I can naturally...seen naturalpaths and alternative doctors, tried all kinds of supplements and diets.  I have seen some improvement, but I am missing something.  I am going to see Matia is 26 days.  I can't wait.  I need her and her help to get myself well.  Yes, it is going to be hard and expensive but I want to get well.  I have been on the list one diet for a little over a week and it's hard, but I think I'm feeling some slight improvement already.  Please don't wait.  I wish I hadn't waited two years.  Lifes too short....just go!

deir's picture
deir

thanks so much all of you! My gut is telling me to go but I am also thinking,"Am I bad enough to go?" I have felt the best I've felt in 3 months for the past week with one bad day thrown in. But I don't want to live in fear for bad days or be afraid to have sex. or live forever on the very limited diet I am on right now. I want someone to connect all the dots for me. I am so tired of going it alone with my health. I have a counter full of supplements and a brain full of so many ideas. it is too much. I need someone to tell me what to do for once!
My big fear is that she will say she can't treat me until I wean the baby. Then I will need to wait because I don't want to impact the baby's health for mine.

DLFox123's picture
DLFox123

Hey,
I found this post by Camille back in 2009 - cut & pasted below
I've been in treatment for 3 weeks and the weight is melting off ( of course I'm also breastfeeding) just in time for my 40th birthday in July! I hate my urgency symptom but I'm grateful to be recommiting to my health and to be heading into my 40's healthier AND to have this 2nd wake up call.
If you search breastfeeding you may find more.
Good luck

Veronica Solano's picture
Veronica Solano

Hi. I have had ic for more than 10 years. At the beginning i could control it but since i didnot know what was right or wrong to eat or take the problem and pain one day got out of control. I wish i knew Matia before it got so bad because by now i know i would be great. I saw Icama and also thought maybe i could do it on my own and i regret that. Now after 2 years in treatment i feel better but have a long way to go. Please go and see Matia, she is the greatest human being and she will know what is the best thing for you and your baby.Maybe what you think is right could be wrong. She will know, she will help you to be happy and pain free again . I really trust her. She is saving me!!

IC-Hope's picture
IC-Hope

After years of conventional medicine & then treating w/ naturopaths (well meaning but actually made me worse b/c they do not know the IC body is different), I finally found Matia... If I had started with her years earlier I probably wouldn't have had the nightmare that ensued.  She is the wisest most compassionate doctor and has gotten people well who everyone else gave up on.  You can do this.

deir's picture
deir

Thank you all so much! i am definitely going to go to LA as long as Matia will treat me! I am waiting to hear back from the office. Thanks and be well everyone!

DLFox123's picture
DLFox123

Sometimes they're a bit slow to respond to a new appt.  If so, just call them back.  After getting through getting the initial appt. - it's smooth sailing.

emmarenee's picture
emmarenee

I treated myself for 6 months while saving the $$ to fly out to see Matia. Just by following the diet I made much improvement. You really need Matia to guide you ever step of the way. Trust her completely. She won't let you down. I was breatfeeding when I started and Matia ( a mom herself) was great. She was very supportive and didn't put me on anything that would interfere with nursing. Please post and let us know your progress. Know that we are all excited for you! Tammy

deir's picture
deir

Tammy- That is great to know! I was thinking that somowene who is concerned with gut health would not encourage early weaning. I have already improved so much on the restricted diet i've been on. I am going to start matia's list ne as soon as I can get enough in th house so I don't starve. Nursing makes you hungry as you kow!