Forums:
I was doing really well last week. It felt like most of the inflammation or problem had moved down in my vagina area. Then I ate a meal from the grocery store with mashed potatoes and English peas thinking it woould be ok and I had a flair that felt like my skin was crawling in my vagina area. The next day I had some bladder/ abdomen spasms and muscular irritation. Today I've had some pressure, a lot of which seems tied to digestion and gas, but I'm not sure all of it is. Tonight I have had to urinate more at night. It also feels like my ovaries are inflamed some. I'm going to start over with list one tomorrow. I have been sticking to it mostly but adding in some fruit from time to time which hasn't bothered me. But now since I don't know what's happening to me again, I guess I will start over.
I get so scared that it's going to get worse. As soon as the vagina and rectum pain that felt like electric shocks began to stop, I started to feel my bladder problems for the first time. That was a while back. Now the electric pain is pretty much gone from my vagina . I used to have the urgency to urinate because my clitoris was sensitive but I'm not feeling the urge to urinate from there now. It feels like its coming more from bladder pressure.
Im just really scared its going to keep progressing and that terrifies me. I wish someone could help me.
Dr. B?
Have you made an appt yet? Generally its a good idea to stick to list 1 until you see her. Fruit isn't added till list 3. Even if it doesn't bother you immediately, it could be contributing in some way. Search in the search box for "list 1 food". There are some great recipes.
Ugh, I know about getting grocery store food. Unfortunately, almost everything should be cooked at home.
I know its scary, but once you are seeing Dr. B, you can email her, and she can sort this stuff out.
Feel better; we've ALL been there. : )
I don't known that I'll ever
I don't known that I'll ever get to see her. I live down South and I'm not even sure I would feel like flying out or be able to afford it. I don't know what to do. I don't understand what's happening to me, and I feel so alone. My mom is all I have and she doesn't even think I have ic, but what else could it be. Everything I eat affects me. I don't understand. I try to cling to hope but when I hurt worse I get so scared. My mom is trying to get me to take the elavil and antidepressants the doctor prescribed but I'm afraid to take them until I absolutely have to. Otherwise' I have no backup.
Why would you not "feel like
Why would you not "feel like seeing her"? I flew out from Georgia to see her over 7 months ago. I wasn't sure I had IC either but like you I thought, what else could this be! Well right now I feel almost normal most days, I eat most foods too. If I was you I would do ANYTHING I could to get out to LA to see Dr. B. She has saved my life and I don't regret being her patient for one minute!
I'm not sure I would feel
I'm not sure I would feel like flying out right now because I d.ont feel that great. Can ou tell me a little about your ic story and how it progressed. Did you ever have flares. What did you do to get better. My mother is trying to push me to take elavil and have the hydrostention. I am so scared and fee l alone.
Read my early posts, it will
Read my early posts, it will tell you my story. I did not want to take Elevil or have a hydro. I've read a Hydro can make you feel worse. I had many flares in the beginning. I was in terrible pain, I was afraid to eat anything, I lost over 40 lbs. I then went on diet List 1 and made an appt. to see Dr. B. because the only other option was to take loads of medication for the rest of my life and hope that it helped stop the pain. That was NOT an option for me, I wanted to beat this. I totally believe this is caused by our bodies being out of balance. I am feeling SOOOO much better since starting treatment. Have your mother look over some of the success stories on this site. I was lucky that my family was behind me 100% in what ever I chose to do about this awful disease but ultimately this is up to you. The flight was only 4 and a half hrs from Atlanta and I had no stops, it really wansn't bad at all.
Thank you for responding. My
Thank you for responding. My emotions like my health is up and down. I wish I had someone who supported me and cold go with me. My biggest fear right now is of it progressing since my symptoms have changed a lot. An I got down today because we had thanksgiving and everyone was eating normally except me and I was hurting.