Its me again.Im sorry I oouldnt figure out how to post.I kept deleting it every time I went to post it,LOL. Anyways Im really curious if anybody has had to quit work during treatment? Or if had the choice to quit would you ? Ive been struggling with this treatment for years.Never been able to do it. Instead I stay junked up on pain meds and blah,blah,blah. Im trying to figure out if working is a big reason why I cant focus enough to go thru treatment.If its really making it that much harder on me, I think its me just being a weak person and unable to find the strength.However maybe work is a lil added stress that makes it seem even more difficult?? IDK ??
I wish I had an answer for you. I know when I started treatment I was not working and I think that helped me move things along. I am now in month 8 of treatment and have been working p/t for about 3-4 months. I think if you are able to not work it may be a good thing, but I do not think it is necessary for treatment to work.
hi mgiles. i started treatment oct. 1st last year and i was contemplating as to whether i should continue working during my treatment. when i spoke with someone from the doc's office, she told me things may get worse before i get better...that scared me. my die off symptoms were manageable and i was able to make it through the tough pains at work, but after my 3 week vacation, i realized it is much better for me to take some time off from work. in fact, my colleagues always told me to go home because they saw me suffering...the stubborn person decided to stick around, but couldn't do it this time. i am getting better teenie weenie bit, but since my pain level was so high to begin with (6-7), i just couldn't deal with it this time around. so mgiles, if you can take some time off without the financial burden then you should...if you have to work then see how things turn out for you in the next few months and if things are good then it's win win situation.
I stopped working, too. I think it helped after I took work stress and commitements out. I had a great job, but I don't miss it. All I want is to feel better.
I am mostly a full time mom. I haven't even considered working in Theatre again right now(I am a choreographer/director and actor) and I am glad I don't have to for income. My husband is a teacher so we aren't rich but we're ok. I am a professional singer and I am lucky to get gigs a few times a month. That pretty much pays for this treatment. I am so glad that IC hasn't affected my voice. I occasionally worry that I will never get back to Theatre or other poeple will step in and take jobs that I could have had but I am *pretty* confidant in my ability and the connections I've made so I hope when I am feeling better- I'll be able to work again. I can't imagine that that part of me is gone.
As far as the mothering goes- I actually asked Matia if people with young children ever got better. She said it was similiar to any high stress job. She said she doesn't usually suggest quitting because it is good to be focused on other things than IC all the time. I find this tough being a stay at home mom because i do think about it almost all the time. Taking care of kids is complicated- it requires all your energy but it is often easy to still have your mind focusing on the discomfort at the same time. I joke that what i really need to do is go to some old fashioned european spa or hot springs or soemthing from the 1920's and "take the cure"for 6 months. I love my "job" and it is my life right now but I do wish I could get more breaks to meditate, read etc. I am working on those things. My husband and I are planning a little weekend trip for July and also my older 2 wil go stay with their grandparents this summer for a week or so. I am always trying to fine tune the routine so I can get a bit more down time.
This is my second round of "rebalancing" after a nasty round of IC symptoms. (The first time in this treatment) I agree with the above lovely ladies, that it is a very individual decision as to what will work for you and quite frankly, if you like your job enough so that it too, can be a sort of healing experience. I am currently on a long-term maternity leave, but will return to my career as a high school history teacher in the fall. I know it will be stressful at times, but I am really looking forward to the sense of normalacy.
Deir and Nadia, you are absolutely right about the isolation- staying home with my little one is a great gift, but it leaves a lot of time for me to think about my IC and not live my life... even if I do have to push through some nasty flares. For me, I am enjoying this time with my daughter and also am looking forward to returning to work. I will have more than a year in treatment at that point and hope that at least the worst of the random flares will be behind me enough to be stable;) Can't exactly explain the particulars of an IC flare to a room full of teenagers...;)
Have to share with ladies that will understand.....And I certainly don't want to say anything too loudly, but this is the second day in a row without a flare. No pain above a 0-3 scale in a lovely 48 hours! Feels like heaven!
Katie
I think it is great, and probably better for most, if you can get away with not working while in treatment. I have no chioce but to work since the boyfriend is in school, and I have a pug that eats more than I do. However, I will say that working does keep my mind off IC. Another plus, since sitting is so uncomfortable, everyone thinks I am such a great worker because I am always "running around". Little do they know I do it to keep from going crazy. Also, when I sneak off to the bathroom everyone assumes I am doing something important since i'm a "go-getter" (and you know, I feel no need to correct them). Anyway, I make the best of the situtation, and I think if you have to work, you can find a way to handle it. The body is highly adaptable to all types of situations. I mean, men who fight in wars have to force their bodies to walk TOWARD the gunfire. I realize this is the worst analogy ever, so I will shut-up, LOL. After being deprived of coffee for so long, I think I overdid it a little today after I got the OK to have it. Anyway, have a great day everyone.
Its me again.Im sorry I
Its me again.Im sorry I oouldnt figure out how to post.I kept deleting it every time I went to post it,LOL. Anyways Im really curious if anybody has had to quit work during treatment? Or if had the choice to quit would you ? Ive been struggling with this treatment for years.Never been able to do it. Instead I stay junked up on pain meds and blah,blah,blah. Im trying to figure out if working is a big reason why I cant focus enough to go thru treatment.If its really making it that much harder on me, I think its me just being a weak person and unable to find the strength.However maybe work is a lil added stress that makes it seem even more difficult?? IDK ??
I wish I had an answer for
I wish I had an answer for you. I know when I started treatment I was not working and I think that helped me move things along. I am now in month 8 of treatment and have been working p/t for about 3-4 months. I think if you are able to not work it may be a good thing, but I do not think it is necessary for treatment to work.
hi mgiles. i started
hi mgiles. i started treatment oct. 1st last year and i was contemplating as to whether i should continue working during my treatment. when i spoke with someone from the doc's office, she told me things may get worse before i get better...that scared me. my die off symptoms were manageable and i was able to make it through the tough pains at work, but after my 3 week vacation, i realized it is much better for me to take some time off from work. in fact, my colleagues always told me to go home because they saw me suffering...the stubborn person decided to stick around, but couldn't do it this time. i am getting better teenie weenie bit, but since my pain level was so high to begin with (6-7), i just couldn't deal with it this time around. so mgiles, if you can take some time off without the financial burden then you should...if you have to work then see how things turn out for you in the next few months and if things are good then it's win win situation.
I had to stop working
I had to stop working temporarily and I don't regret, it has helped for the better tremendously.
I stopped working, too. I
I stopped working, too. I think it helped after I took work stress and commitements out. I had a great job, but I don't miss it. All I want is to feel better.
I am mostly a full time mom.
I am mostly a full time mom. I haven't even considered working in Theatre again right now(I am a choreographer/director and actor) and I am glad I don't have to for income. My husband is a teacher so we aren't rich but we're ok. I am a professional singer and I am lucky to get gigs a few times a month. That pretty much pays for this treatment. I am so glad that IC hasn't affected my voice. I occasionally worry that I will never get back to Theatre or other poeple will step in and take jobs that I could have had but I am *pretty* confidant in my ability and the connections I've made so I hope when I am feeling better- I'll be able to work again. I can't imagine that that part of me is gone.
As far as the mothering goes- I actually asked Matia if people with young children ever got better. She said it was similiar to any high stress job. She said she doesn't usually suggest quitting because it is good to be focused on other things than IC all the time. I find this tough being a stay at home mom because i do think about it almost all the time. Taking care of kids is complicated- it requires all your energy but it is often easy to still have your mind focusing on the discomfort at the same time. I joke that what i really need to do is go to some old fashioned european spa or hot springs or soemthing from the 1920's and "take the cure"for 6 months. I love my "job" and it is my life right now but I do wish I could get more breaks to meditate, read etc. I am working on those things. My husband and I are planning a little weekend trip for July and also my older 2 wil go stay with their grandparents this summer for a week or so. I am always trying to fine tune the routine so I can get a bit more down time.
This is my second round of
This is my second round of "rebalancing" after a nasty round of IC symptoms. (The first time in this treatment) I agree with the above lovely ladies, that it is a very individual decision as to what will work for you and quite frankly, if you like your job enough so that it too, can be a sort of healing experience. I am currently on a long-term maternity leave, but will return to my career as a high school history teacher in the fall. I know it will be stressful at times, but I am really looking forward to the sense of normalacy.
Deir and Nadia, you are absolutely right about the isolation- staying home with my little one is a great gift, but it leaves a lot of time for me to think about my IC and not live my life... even if I do have to push through some nasty flares. For me, I am enjoying this time with my daughter and also am looking forward to returning to work. I will have more than a year in treatment at that point and hope that at least the worst of the random flares will be behind me enough to be stable;) Can't exactly explain the particulars of an IC flare to a room full of teenagers...;)
Have to share with ladies that will understand.....And I certainly don't want to say anything too loudly, but this is the second day in a row without a flare. No pain above a 0-3 scale in a lovely 48 hours! Feels like heaven!
Katie
Work Sucks
I think it is great, and probably better for most, if you can get away with not working while in treatment. I have no chioce but to work since the boyfriend is in school, and I have a pug that eats more than I do. However, I will say that working does keep my mind off IC. Another plus, since sitting is so uncomfortable, everyone thinks I am such a great worker because I am always "running around". Little do they know I do it to keep from going crazy. Also, when I sneak off to the bathroom everyone assumes I am doing something important since i'm a "go-getter" (and you know, I feel no need to correct them). Anyway, I make the best of the situtation, and I think if you have to work, you can find a way to handle it. The body is highly adaptable to all types of situations. I mean, men who fight in wars have to force their bodies to walk TOWARD the gunfire. I realize this is the worst analogy ever, so I will shut-up, LOL. After being deprived of coffee for so long, I think I overdid it a little today after I got the OK to have it. Anyway, have a great day everyone.