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Good Morning! I Hope you all had wonderful Christmases/Holidays! I don't post a lot on the board ususally becuase it can be too emotionally draining for me so I apologize for not providing more support to all of you. I am 5ish months into treatment and making great strides with my bladder/urethra/vagina I think! The first 4 months were slow but I've been doing really well for most of December.
Anyway, I think I have developed a thyroid issue. I found a small lump in the front of my neck that seems to be attached to the thyroid a couple of weeks ago. My neck has started to feel a little sore but I'm not sure if it is just because I'm tense over this. I'm just really bumming and stressing out over it. It's like I get to feel normal for two weeks and then bam it's taken away and I'm getting married in June. My friend (who is a natural chiropractor) thinks it is from the limited diet and because I eat such mass quantities of cauliflower, broccoli, and cabbage which can slow the thyroid. I just feel dumb if I created yet another problem for myself by making myself deficient in certiain vitamins/minerals.
I'm going to go get it checked out which I hate to do because I've had such terrible experience with doctors in the past. I REALLY don't intend to freak anybody out - I just wanted to see if anyone has any sort of similar experience. You are all going to be fine :) :) :) Thank you!
Hi Alishia!
Hi Alishia!
Glad you are making good progress. I look forward to more improvements myself, as I am only 2+ months into treatment and it is slooooow!
Hmmm, let's start with the cauliflower theory of your friend (no disrespect). If cauliflower was going to cause this lump, then a good portion of the many, many people that have done this diet would also have exhibited these lumps, which is not the case ;).
This is NOT to say that people have not experienced thyroid issues (signs and symptoms both because it is probably common). I have some mild thyroid symptoms. Constipation and cold hands and feet are hypothyroid symptoms and my bloodwork points to lack of T3 conversion and I have a very small lump (not noticeable at this point).
Have you mentioned this to Dr. B? I am sure she will give you some reassurances.
Have you read Dr. B's dissertation? (I highly recommend). I was a bit too foggy-brained in the beginning to read much, but now am finding I can really sit down and read it and it is very interesting. In the Chinese Medicine view of things, the body stores the illness in various places, until it reaches a critical point and the chronic illness symptoms are manifest in a really obvious way (IC in our case). During healing, the body moves it back out again. So it is not uncommon for people to have very strange symptoms that resolve quickly, or over some time. She mentions, in particular, the thyroid. Hypothyroidism is seen very commonly in people with IC. But in the TCM or CCM view of things, the thyroid issue is secondary to the IC, but is part of it. So if people are treated with thyroid medication, it may in fact worsten the IC issue. The disease process that brought on the IC may include a constellation of symptoms that preceeded the IC, and/or will crop up as the IC receeds. Rest assured your body is moving the disease away from your major organs and out! Just not as rapidly as we would like! (Hmmm, as I type this, I just got some really fun tinnitus-ringing in the ear-that came and went--really fun!)
Hope that helps and I am sure others/Dr. B can shed more light.
If we don't excel at health, the only other option is disease.
Thank you Mimi so much for
Thank you Mimi so much for your reply! You'd think after all this time I wouldn't let myself get in a tisy anxiety fit but I still have! You're right. When I mentioned it to Dr. B on Friday she said it would be a good idea to get it checked out but that it is most likely nothing and could be anything! It's so hard to know what the best thing to do is. I have read the dissertation but it was months ago before I started treatment and I think I should re-read it because maybe it would all make more sense now! I get that funny ringing in my ears too and have struggled with constipation and cold hands and feet. It's so crazy how similar we all are. I hope you have continued healing and progress! Thank you for taking the time to talk me off the ledge :)
Alishia
Glad I could be of some help.
Glad I could be of some help. I was also reading that healing "crisis" usually happen when the body is starting to feel better in some respects. It is as if the body has more energy to move to the next phase of healing, if that makes any sense.
If you are still reading this thread, do you mind posting how you think your IC came about? Also, with your symptoms improving, what list are you on?
Tx!!
If we don't excel at health, the only other option is disease.
I think my IC was brewing for
I think my IC was brewing for a long time. I had what I assume was a UTI when I was 13 that I left untreated for a few months. Or perhaps that was my first bout with IC. I struggled with my wieght as a teenager and when I went to college I developed insulin resistance that led to polycystic ovary syndrome. I didn't realize it though for three years. So during that time that I was insulin resistant I took Birth Control because I had stopped having periods. Things came to a head when I was 21 and having terrible abdominal pains and that's when we found out about my ovaries. At that point, I went off of Birth Control and onto Metformin (a drug used to control your insulin levels). I lost about 30 pounds and felt really good for about 1 year. At that point I started having lots of vaginal issues and recurrent "UTI's" Looking back, I do not know if they were UTI's or not... I suspect not, becuase the symptoms would wax and wane. I took around 6 rounds of antibiotics and 2 or 3 antifungal rounds over that two year span. Around mid-2011 when I was 24 I began to just not feel good. I would swear I had mono one week and then something else terrible the next. I really started to struggle with hypochondria and phobias during this time. I started having a gnawing belly pain after I ate. That led to taking a prescription strength antacid (Dr. B thinks this was the last straw) and then all of a sudden my back started to hurt. At this point I literally thought I am dying and thought that maybe all this abdominal and back pain is "just" a UTI. I go to my doctor and he gives me a prescription for Cipro even though there was little bacteria in my urine and after four days of that all hell broke loose. I was having joint pain for the first time and I felt worse than ever and basically i've been attempting to recover from that ever since (that was October, 2011). I took two more rounds of antibiotics with that terrible doctor because I reacted so terribly to the cipro. My main symptoms were pressure and urgency and some pain here and there. All three of those symptoms have really improved. I feel like I could write TONS more about this but I am already rambling. I would go to the bathroom and stand up and just feel like I wanted to sit right back down. My main symptom was the feeling that I hadn't completely voided. Before seeing Dr. B I cut out gluten and that seemed to help me alot. I also was seeing a natural chiropractor at the time but we couldn't get my urinary symptoms under control. I was taking a strong dose of dandelion root and started having rashes all of my body.
Since starting with Dr. B in July, I have had all sorts of events lol. My periods got worse for a couple months with lots of clots but have really improved the last two months. I've had rashes and discharge from everywhere! Including my left eyeball! It has leaked liquid down my face on a number of occasions. I have some headaches and nausea but nothing too severe. Adding Bifido in has been the biggest challenge but I am already taking a full one at each dose and tolerating it fine! Dr. B has said she thinks i'm less of a yeast/bacteria case and more of a deficiency case if that makes any sense. I still really struggle with anxiety and some depression. I think stress plays a huge part in this whole thing. Everything came to a head for me when my parents were going through their divorce and I know that had a big impact. I was just approved for list 3 last week without fruits! I ate some carrots last night and it seemed to go OK! very very exciting! I do need to be grateful for the strides I've made and try and handle this throat lump in stride. Anyway, I'm not sure if you wanted my whole life story but that is what you got. Let me know if you want me to elaborate on anything! Take care.
PS there may be typos (i'm too tired to proof-read) lol - Being tired all the time is one of my biggies.
Thanks for your story! has
Thanks for your story! has your joint pain improved? I think I am a bit more of a deficiency case too, but not quite sure. I do not have much die off and worry that my immune system is really out of whack and may be very slow to heal. But who knows. I am 10 weeks in and my biggest improvement has been sleep, which is a blessing, but I wish I had improvements in my bladder during the day.(I have tiny ones, I think, more recently). I know it is a slow process. But the day to day is hard and can make me anxious at times.
If we don't excel at health, the only other option is disease.
Yes my joint pain is much
Yes my joint pain is much better. The only real issue I still have is some very minor knee aching around my period and ovulation.. I know it is so hard to believe this is all going to work early on. The first month or two was tougher for me than I thought it would be. It really hasn't been until 4-5 months in that I have felt that I could trust my body more to not hurt and cause me problems :) (until this dumb lump/bump) YOu will definitely get there. I have to believe that dr. B wouldn't give our immune systems more than they can handle. Have you told dr. B you feel anxious? She may tweak your protocol a bit. Have a great weekend!
Thanks Alishia
Thanks Alishia
Dr. B is giving me Rhodiola for my blues and I have recently started Vitamin D. I will ask her if there is anything else.
If we don't excel at health, the only other option is disease.