I'm just putting this out there because I'm curious if there are any common factors in what caused this. This is a bit personal but mine started after using a vibrator. I thought maybe I injured my bladder or a nerve as the result. I've had many doctors tell me that this wasn't the case, and one initially diagnosed me with vulvodynia instead of IC. In fact after telling the specialists ive seen about this, most agreed initially I didnt have IC. But when one told me I might have it, I went nuts, panic attack after panic attack that led to pelvic pain pressure.

Just FYI, I have sent a couple emails to people on here, and never got a response..... So I tried sending a copy to myself and it was in my SPAM inbox.... So just letting you all know. I wonder if there is a way we can fix that.

My symptoms seem to change all the time. For the past week or so I have been experiencing pain or urgency in one side of my abdomen. It feels like its my bladder but also feels like its my bowels. I just wondered if anyone else had experienced anything like this. M mind goes crazy thinking its going to get worse. 

I don't think I can go on much longer. Every day is a new symptom. I'm afraid to eat anything. I try to stick to the diet on the website but its almost impossible sometimes. I don't feel as though I'm getting enough nutrients. I'm terrified that everything I put in my mouth will cause another symptom. Today my symptom is pain in my lower left side that feels like bladder pressure but also somehow tied to the gut. I fear that I have nerve entrapment or damage. I think I may give up soon. I feel so alone and lost in the world. This has taken my life away.

Hello everyone - back again, sounding like a semi-stuck record!! Just wondering if anyone else has experience of bowel issues triggering vaginal irritation?!

I have been in treatment for a little over a month. We are having trouble finding the right combo for me & I am beginning to become very discouraged. I felt better just doing the diet. I have gone through at least 5 protocol changes. I started the last combo on Friday...while it didn't make my pain worse, it remained pretty low but was worse at night. Then I woke up today...day 4 in Alot of pain....lower pelvic burning & pressure. I just can't understand why, I did nothing different. No diet changes or product changes. What does this mean? Is it the herbs or just a bad day.

Is this a thing?  I just woke up with a hella itchy and swollen ankle/topside of my left foot.  I'm currently on a super strong detox formula.  Has this happened to anyone else?

Just thought I would share-after 3 years I finally, finally seem to tolerate green and black tea. Oh boy! This is huge. Something other than spring water. I am too afraid to try anything else for the moment but maybe soon. Yippee!