The Little Things *positive thread*

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Hello to all!

I've been doing Matia's treatment since June 2008. It's been hard and hard and hard, lonely, and most of the time, I just didn't know if I was ever going to get better, even just a little better!

But I am, *a little* better. There are little things, little signs, that show me that my body will recover from IC. Most of the people who recover don't turn back to show us how bright it is on the other side and I do not blame them, in fact, I am looking forward forgetting about this illness all together too :-)

So I'm creating a place where we can all write down our *little signs* that give us hope and joy. Please keep this thread positive as I'd like it to be a place where people can rest from all the questions, worries and fears that darken our journey towards health.

 

So I'll start:

I'm thankful for the full night of rest I've had last night, after such a long period of getting up 5-8 times!! And I'm thankful that I could forget about my bladder for the first few hours, today.

I'm thankful for the 50 minute walk I took yesterday morning, I didn't have any urgency (usually, I have to stop at least once) and could enjoy nature, the sky, the fallen leaves, the ducks and swans, the river, the joggers and cyclists, couples, parents and children. It felt like I was part of the world again :-)

I'm really so thankful...

 

emmarenee's picture
emmarenee

I'm proud of you too! I'm wishing you a speeding bounce back from the dental visit and hoping your next outing will be for something more enjoyable! Tammy :)

Hopeful's picture
Hopeful

I slept for 7 hours strait last night... couldn't believe it at first. This made me very happy. I haven't slept that long without having to get up since I can't remember. Just thought I would share as there is HOPE!

nicole's picture
nicole

yay congrats on your sleep i hope it continues for you :)

veryhappymom's picture
veryhappymom

Nicole,  You should celebrate!  I have mild anxiety issues and dread going to the dentist.  If you can face having nine cavities filled, then you are ready for almost anything.  I am especially impressed that you didn't even need to take Xanex:0)

nicole's picture
nicole

Thanks Ladies for your support it was the hardest thing and I did cry a lot and had to postpone several times but I got through. Now one of them appears to be too deep into my root and there going to have to go back in and take out the filling and put some sort of medicine in to kill the infection. I am really freaked out about the whole thing. I think they are doing a root canal but I am not quite sure I am waiting to hear back. I am suposed to go on Monday I am upset because they should have done this the last time I was in or done it right the first time. I am supper upset. Matia is hitting me hard with the herbs for now and I hope it works out to kill the bacteria in the root. The thing is they packed that hole with filling already it's killing me. So I need  your prayers to finish this once and for all. I am so looking forward to the meeting this weekend I need it more then ever.
I just keep tellling myself I have come this far by faith I know I can do this.
 
It looks like I will be pulling this tooth because everything I read on natural health and teeth are against root canals.

nicole's picture
nicole

I can finally add Potatoes  back in my diet yay. :)

ballerine's picture
ballerine

My skin is doing better... My back cleared this summer (just in time for little dresses :-) and now my forehead is rather smooth. I keep encouraging the rest of my face to get inspired by my forehead haha...I am THRILLED by all your little improvements, keep them coming!!

Honeybee's picture
Honeybee

In general I've been feeling better in my bladder and VV (with spells of burning inbetween the good places) to a new level and I had my first really mild period-little cramping/pain etc. For someone who was often doubled over with pulsating pain this is unbeleivably amazing. It's just crazy how much better it continues to get!I'm still not syntom free  or anything but I am overjoyed to feel these positive changes!

veryhappymom's picture
veryhappymom

I went of Neurontin and only have one drug left!  My neralgia feeels much better than expected.   I was reading up on Neurontin and found out it contained lactose.  Hopefully, my mood and energy will also improve now that I am off this drug.  Now, I need to get well enough to get off my last med, which is a narcotic pain killer;o)

aboros5's picture
aboros5

Sharon, this is so so so great to hear. i am working on getting off of effexor (anti-depressant) right now. i've been on effexor for many years because it has always been the one prescription that has a direct & significant positive impact on my vv pain (which is mostly related to my hypersensitized nerve endings). matia really thinks its a good idea that i go off of it and i have been wanting to do so for some time but of course have been really scared that my pain will get worse once that buffer is gone. but i'm thrilled to hear that you were able to move off of neurontin and your nerve pain hasn't gone wild. at this point, i'm taking one 75 mg pill every third day, so i'm getting there - but totally anxious about it. one piece of good news is that i've gone off my thyroid medicine which i've been on since i was 19 and have had no problem. i still have TONS of energy. also, one other quick tidbit of good news... had my annual phsyical and my cholesterol is way down: 177 (it was 238 two years ago) and the good cholesterol is high and bad is low. also blood pressure is super low. guess those are at least little things to celebrate while on this rough road. :)

lolo's picture
lolo

Hooray! Congratulations Sharon and Good Bye Neurontin!!One to go..well-done.....Lois 

nicole's picture
nicole

YAY Sharon!! I know you can do it and I am so happy and proud for you and your acomplishment . Your on your way to restored health :)

researchnerd's picture
researchnerd

 I just realized that I had my first serious pain flare in months--and I hadn't even noticed they were gone.  I mean--I still feel crappy all the time etc--but that "oh god, I have to lie down feeling--a distant memory".  Yay!
 
My real reason for posting is that I'm thankful to not be using the western protocols for my healthcare.  I have major ear problems, and have for my entire life.  I have a very typical pattern (cold, fluid, negative pressure for sustained periods), and their solution...sudafed!  nasal stimulants!  gross gross.  When I told the Dr no yesterday he THEN recommended a netti pot!  Why would you offer the least damaging method LAST.  Oi vey!  The funniest part, he didnt recommend cutting out sugar OR dairy, which is common sense in naturopathic medicine.  I mean--obviously I'm not eating sugar, but he didn't know that!  So I guess instead of feeling cursed, I feel a little lucky.

nicole's picture
nicole

I haven't tried the neti pot but I seem to have ear problmes when my yeast is up. I have not had cold symptoms in a long time. I have used ear candles in the past and still do when i feel blocked. You would be amazed what comes out of there. Matia does know I use them.
congrats on getting off your western meds. Disease starts as a cold from what I have read.:)

Melsvensen's picture
Melsvensen

Day 4 in treatment and I am so sick to my stomach, dizzy, muscles hurt, pain on and off in my abdomen, tired, moody, lower left pelvic burning, burning anus.  I am very happy about this!  This is die off for sure..the formula she gave me is working.  This is something to be grateful for..healing has begun.

Melsvensen's picture
Melsvensen

And I have only gone pee TWO times today and its 1:00pm:))))))))))))))))))))Normally I would have been to the bathroom at least 5 times by now. I know things will wax and wane, but this is amazing!

Dazzo11's picture
Dazzo11

this is just wonderful and inspiring...esp to new comers like myself...thanks!!  xxoo

ballerine's picture
ballerine

OMG OMG OMG OMG!!I have the green light for veggies on list 3. You guys, that means tomatoes!!!!  I almost can't believe it.Matia also said I could try almonds. God I love almonds. This is going to be a really cool week! Trying out stuff.What a blessing. I am getting well.Sending my warmest wishes to you all out there, keep up the motivation, the strength, we are doing this!

nicole's picture
nicole

that is so wonderful congrats and enjoy every moment. :)

Melsvensen's picture
Melsvensen

I have been salivating looking at my husbands salsa!  I am so excited for you!  Enjoy!!!!

veryhappymom's picture
veryhappymom

I made it the whole day without a pain pill which is huge progress for me.  I coud even imagine this a few months ago.  I had pain but could handle it.  Now I just need to stop the night time med.

Melsvensen's picture
Melsvensen

I am very excited I have been moved to List 2, and I had an avacodo yesterday and today and it did not effect me!  It was so tasty.  Normally I would flare before treatment with an avacado. Not now!

hope's picture
hope

Congrats on the progress Melsvensen! I have been following your comments since you started, see you are getting there gradually. When you are ready, you could perhaps try more snacks with Avocado oil as well (Ofcourse ask Matia first, she recently asked me more about where the snacks are available so she could share it with others who may be ready to try it). Here are a couple of chips from goodhealth that you can order online for a good price. Others have shared the link before but just as a reminder: http://www.goodhealthnaturalproducts.com/avocado.htmlhttp://www.goodhealthnaturalproducts.com/oliveoil.html

lovemyangels's picture
lovemyangels

CONGRATS!  That is so great!I have been moved to list 2 as well though I have not tried an avocado yet.This is embarassing, but how do you eat it?  Do you just peel it and slice the inside or is there some trick to it?  I have only eaten it as a "salsa" so to speak.Thanks!Congrats again!

Melsvensen's picture
Melsvensen

You are so funny!  With avacado, I just cut it open around the middle, scoop it out and put it in my salad, or sometimes I will just eat it.  Some people like salt on it.  Make sure when you open it that it is not brown inside.  It should be a nice smooth greenish color. Do not open it up until it is less then firm, you should be able to give it a squeeze, and it will make an indent, but not so much where its mushy.  It sometimes takes a few days to ripen.

lovemyangels's picture
lovemyangels

your the best! Thx bunches!  xo

natasha149's picture
natasha149

I spread a ripe avocado instead of butter on my toasted spelt yeast free bagel and cover it with Applegate farms turkey or ham (the kind that has no sugar or honey). Sometimes I melt a small slice of mozarella on it first before avocado. This has being my breakfast for the past 2 years and I am addicted to it :).

natasha149's picture
natasha149

My 21 months old daughter is sitting on my lap and eating grilled brussel sprouts, bell peppers and broccoli off my plate with such appetite as if she was having an icecream (that she hasn't tasted yet). I am thinking to myself: if this horrible disease will make me teach my kid healthy eating habbits and will protect her from all kinds of physical suffering in a long run, that alone just makes this whole IC terror worth fighting!

Melsvensen's picture
Melsvensen

I have got through my 30th birthday last week, Christmas eve parties, and Christmas parties without cheating on the diet!  I am very happy about this, cause if I can pass up ALL those sweets I can do this diet long  term:)

Wen57's picture
Wen57

I have been feeling so much better for 13 days now.  My bladder pain is so much better and I have been able to pee without severe pain.  My whole peri area is calmer and more relaxed.  I have been able to exercise and do sit ups and curl ups with out my bottom hurting every time I roll up.  I have been able to drive to work with less pain and walk around at work with out dreading every step.  I have been sleeping better and usually and have been waking up only 2 times per night to pee.  2 weeks ago Matia changed my SF to Oreganol and it seems to be doing the trick for me.  I have started the Bif now also and have been working on increasing my dose very gradually.  The best part is I have been drinking very dilute instant decalf coffee and it is so nice to have somethhing other than water.  I have had the Mountain Valley water delivered to my house and I have 5-6 bottles of it in my car- ready at all times.  I take it into work, church. the gym, and if we eat out anywhere.  I can tolerate other water but I try to stick to my water 95% of the time.   Matia's protocol is working for me after 2 months, and I am very grateful.  I am thankful that my body is comming back into balance.  A nice side effect is that my acne seems to be way less too.  I am using lots less benzoyl peroxide and my oily skin seems to be a thing of the past.   This all occurred after a rough holiday season and just when I didn;t think I could take it anymore.  It was worth it to stick to the diet and take all the herbs as directed.  Yoga has been my lifeline as well as this web site!  I hope this encourages everyone to do your best, rest, and be good to yourselves. 

Melsvensen's picture
Melsvensen

I am SOOOOOOOOOOOO encouraged to hear this!!!  Thank you for posting!  I am not at all doing better with my bladder, and very sad at the 3 month mark, but I have hope and know I will get better in time.   Your story has given me my hope back today!

camille's picture
camille

Just wanted to add to the positive thread –– a week and a half ago Matia added something to my protocol which completely put an end to my incontinence, which was getting worse and worse.  Since the herb change, I have been leak free and my urge is improving!  I'm so excited. Since being in treatment this time around, this is only about the third time I've experienced the protocol change giving me dramatic results.  Usually, they are so subtle, I wonder if the whole treatment is even working, because IC can really mess with our minds.Just wanted to report that this treatment does work, and that we need to HANG IN THERE.  It's been almost a year for me this time around. 

natasha149's picture
natasha149

For me it's been 19 months the second time around, and even though it is terribly rocky, yes, Camille, IT DOES WORK!!!!!' :)

Honeybee's picture
Honeybee

A few weeks ago I had my first ever menstrual cycle where I had no pain. also I cannot even recall if the ovulation time period was intense on my IC?  I was at work and went to the bathroom to urinate and lo and behold my moontime had started!  It was on time but I just forgot about it cause I used to get cramps in advance so I KNEW it was coming. For the last year and half I have had my cycle improve where I didn't need  ibuprofen to function and it was better but I still had what I called these werid blunt pressure cramps for a 1-2 days. They didn't feel as intense as my cramps used to be ( used to be insane horrible debiliatating cramps ) but they were still kind of there and a little uncomfortable but tolerable. This was the first one where they were not there. I kept waiting for them to show and nothing. I also noticed I did not have terrible PMS emotional issues leading up to my period or painful breasts either. WHOA! This is huge for me! Finally getting my reproductive/hormonal system on track! For those of you who have had menstrual cycle issues for forever-( me pretty much since the beginning)... its going to improve okay! YAY! Mary

Melsvensen's picture
Melsvensen

the changes are SO slow for me, that I almost feel like they are not happening, but I am overlooking all the things that ARE improving because my frequncy is still there.  Last night I slept 8 full hours without waking, and I fell asleep without having to get up to pee.  I have not had any urethral burning yesterday.  I need to focus on these postives, when I am so focused on the things I want changed I miss the things that are.

Hopeful's picture
Hopeful

Mel, that is great! I also for the first time in my life had something really good that happened because of treatment. I had a period with NO back pain, cramps or really bad mood swings. It was so weird. I had no warning that it was coming, just my bladder getting worse. So I hope next time it is the same!

Melsvensen's picture
Melsvensen

Although my body is still not tolerating all the foods (swollen hands, joint pain), my bladder is!  I have tried almost everything on list 3 and have not had any pain in my bladder.  I am still dealing with frequncy, but the pain has been gone for almost 2 weeks!:) (except one little incident on Sunday)

ballerine's picture
ballerine

WOOOOOOOOOHOOOOOOOOOOO EVERYBODY!!I'm so happy for all you who are are experiencing improvements. Little steps count!I have been sleeping well for months. I used to get up a million times during the night, this hasn't happened once for the longest time! I am one happy sleeper.Moved to list 3 completely and let me tell you that I am ENJOYING my blueberries. I used to be a fruit freak, a fructivore is more like it. But I would also be bloated without end....I'm also loving grapefruit, a little apple, almond butter!It's important to keep being thankful for all these little things, I need to remind myself about them very often, specially since I've been breaking out big time in my face. It's so hard to wake up to pimple face... but that's for another post.So... to all of your reading this, keep going, keep going and keep going!!!!love from Germany xoxoxxoxox

veryhappymom's picture
veryhappymom

For the last week, I have been sleeping like a baby :o)  Until recently, I used to dread eveings because my pain levels made sleeping really difficult.  If only I can move to list 2 soon.

veryhappymom's picture
veryhappymom

Yeah! I had a period with tolerable cramps for the first time. This is my first period that I haven't taken a Naproxyn:o)

Colleen Bramlage's picture
Colleen Bramlage

Hello!  I have only been in treatment for 3 weeks.  I know I am not jinxing anything cause this is it!  This is the answer.  I am already making progress.  I have less pain, frequency, bloating, pressure, back pain/leg pain, etc... I have been sick with IC since Nov. 05 and this is the best I have been in over 4 years.  I am now walking without pain and feeling like I have a future.  My anxiety is so much better.  I definitely have detox symptoms but that is NOTHING compared to the symptoms I had all the time with IC.  The diet is hard, but now there is no going back.  I can do this!  I am doing this!  Anybody out there who thinks they will not get better, know you will with Matia.  She is our answer.  I can't wait to continue with this journey because it just keeps getting better and better!
I thank the Lord for Matia everyday!

cecilia's picture
cecilia

  I just wanted to share something with the Newbies and the Old-bies for that matter. For the newbies, don't be mislead by the lack of positive stories on this board or in other places. For the most part, the people that are active in the forums are the ones that are struggling the most. What I have found is that for the most part, once people are 100% better, they " move on", they don't want to share their stories, they don't want to offer support to others, they don't want to be reminded of all the pain and suffering they went thru. They just want to forget about  it, and think of it was one nightmare that is the past. Also, a lot of us are very superstitious and are afraid to share our improvements, for fear of jinxing ourselves and go thru those things again...
  There are sooo many positive improvements out there. I encourage the newbies not to be discouraged and I encourage the old-bees to reach out and SHARE... remember where you used to be, and how much encouragement you needed in the "old days".
  I also encourage the newbies to remember this place in the future. Its amazing how people say they will NEVER forget but once they are 100% better, they do forget !
   Take all the help and support that you recieved and pay it forward!!....
 

Colleen Bramlage's picture
Colleen Bramlage

So true Cecilia.  I talked to Matia about this as well.  She told me to go on and post my improvements so others can see and have hope.  Though I am early in treatment I am already feeling better.  God is not going to jinx me... I found this path because of my long hard prayers.  I still have a long ways to go but I feel free!  I have suffered for so long and ecstatic to know that now I have a pain free life ahead of me :)!

Honeybee's picture
Honeybee

Hey all- I just wanted to say that after 2 years of treatment I am finally starting to really feel good.I read it somehwere and its true -It's like my sense of "normal" keeps getting better and better and better. I am feeing good mentally too- and my brian fog is clearing up! I had VV pain that was HORRID this past year.It's better. not totally gone but not inflammed sand paper burning!  My bladder has improved alot but can flare from time to time but it is def better overall -the VV pain is waaaay down and seems to improve each month a little more. My treatment has been extremely gradual and VERY cyclical with good and bad feelings alternating. The good days and starting to outnumber bad days for sure. I am noticing that I don't think about my bladder at all. I don't have werid dizzy spells or get up at night to urinate. I DO have some admitted digestive issues- which are the core of my Ic of course but we are working on those! In fact when I tell Matia- hey I get heartburn from the probiotics sometimes she will say- "that's good! they are working! " If I thin of more I will post more soon and I promise to be more forthcoming with the positive things! Love to all-oh and I am overcoming massive constipation issues. Very exciting. 
Mary

michelleg's picture
michelleg

This is soo nice to read.Didnt even notice this before,idk why? Anyways I like all these post that are explaining the improvements that you are having.WOW, WOW, WOW !!!!!  For us IC'ers we know how big every little change is. AMAZING !! I hope this keeps going cuz its sooooo powerful for us newbies and the veterans as well,lol. Ahh I'm starting to see more positive on here and its appreciated!!!!!!!
THANKS FOR THE INFO Cecilia, Colleen ,Ballerine,Hopeful,Honeybee,Melsvensen,VHM and the rest of you amazing women.I cant remember all your names,I'm sorry, but I'll learn here soon.
I'll promise to keep posting my updates once I get started on my treatment as well. :o)   ~~ Michelle

emmarenee's picture
emmarenee

You have found the road to wellness. Reading your posts have brought back memories of how I felt when I first found this site. I was slammed with IC in May of 2008. I frantically surfed the internet for information. The things I read on the medical sites terrified me. Then I  asked the right question. IC recovery stories?, and found my way to this site. I read all of the success stories and followed the other bloggers stories. It was my lifeline. It still is in so many ways. As I feel better, I spend less time on ICAMA. Thanks for the reminder Cecilia. I was encouraged by so many people in those dark days. They helped me make it through the rough times with less fear. They gave me the hope that I needed to endure. I need to "be there" for the new IC'ers. I am still in treatment with Matia but feeling well day to day. I want to tell you Michelle that you will feel well too. We're here for each other. Tammy

DLFox123's picture
DLFox123

Hello all, some of you I feel like I already "know".  I surfed this site since April before I finally met with Matia.  I was quietly following you all, searching for answers, and took the official plunge a little over a month ago.
My typical IC symptoms were nowhere near as debilitating in the conventional since.  I've had mild bladder problems starting in my early 20's.  Over the years the situation was getting worse and worse. My symptoms were getting stranger and stranger.  I was tired of being perscribed another pill without looking at me in my entirety.  So, when I landed on this site, what a comfort to hear some of myself in your voices.
 I am now officially 50.  and while not having the bladder and vulva pain to the same degree as many of you, in the last twelve years I have survived breast cancer three times.  I celebrate that it once again appears to have not traveled anywhere else.  With that celebration came the desire to get my life back; a life that did not include IC.
After treating myself for several months (I was lucky that it worked out for me) and being under Matias  care for the last month, I am feeling so much better - not perfect, but better.  When something strange starts to happen, I "search" the symptom and know that I'm not crazy, that I'm on the right road.
So, ladies, thank you for traveling the road ahead of me.
Denise

michelleg's picture
michelleg

THANKS TAMMY !! Its nice of you to post for us looking for some hope and answers on here.I can see how its easy to move on and put this monster behind you.Who'd ever want to remember this nightmare? However on the flip side it doesnt take much to post a little encouragement for the people that desperately need it on occasions.SUCCESS STORIES ARE SOO UPLIFTING.Its amazing how  just a pharagraph can put soooo much hope inside you.Its made me feel so positive these last couple of days, cuz thats what I'm focusing more on and not all the bad die offs, hard diet and general fear.
I feel so happy for you. I absolutely love knowing your living your life again. :o)
 

cecilia's picture
cecilia

MichelleG, feel free to contact me privately using the option ( yours is blocked), and I would b happy to share my story to offer some encouragement and also share some others that I have witnessed.....
 
all the best
Cecilia

natasha149's picture
natasha149

I've been in treatment for 2 years and 2 months. I go without symptoms 3 to 4 months a time now. I mean NO SYMPTOMS. The last time I had a bad flare was after using a new shade of Naturetint. I've been a huge fan of that company and have been using 2 shades 7c and 8c for years without any problems. And then I was feeling soooo good for so long that decided to try their new shade, called Copper Arizona and had a massive flare that took us 3 month(!) to calm. Matia thinks that that shade must have higher chemical content (hence more red). Since then I started using Light Mountain henna that Angela recommended, and have no problems at all.
My issues were always mostly bacterial, and I understand "bacterial" cases might be harder to treat.
But other than that I feel absolutely healthy: no constipation, insomnia, fatigue, depression, hemorrhoids, acne, anxiety or anger. Sex feels great again. I don't find a single hair on my brush!!!! It used to be really bad. I am sure I missed something. I am writing this and having a very hard time believing it myself. That is how sick I was for years, and it has all completely resolved. The most umbelievable for me are depression and anger, I was suffering since childhood. I am still keeping myself on list 3, evem though Matia allowed already many things from list 4, but I am waiting for my bladder to be more stable, no hurry, to me List 3 feels like heaven :)

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