I thought I could live my life again as if nothing ever happened.....

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I have been a patient of Matia's for over four years. When I first came to her I was very sick and depressed. I was 27 years old and had a two year old son I could no longer take care of. I was lucky because I had a wonderful mother who helped out. I was in so much pain, both physical and emotional. I was lucky to find Matia. When I came to Matia, I asked if she knew someone who was on her way to getting better and was willing to talk to me. She told me that there was a women in New York who was willing and would be giving me a call. She was also from the same country and background which made it even better.

She called me, told me her story and gave me her number. It was so nice to have a person to talk to who understood what I was going through. She told me it wasn't going to be easy but gave me so much hope. Me and Matia went to work and it was anything but easy. I was on a strict diet for over a year. I had pain, burning , frequency, etc. There were days that all I did was stay in bed, eat my food, take my herbs and cry all day. On top of that, one day I called the women in New York and her mom answered and asked me not to call again. I was devastated. She was my only light in a very dark world. Everything went through my mind. What did I do, What did I say, I could not understand what happened. I cried for days.

I now understand exactly what happened. When we get sick with this awful disease, we change, at least I did. I was so scared that I went from being a fun loving, outgoing person into a very needy one. Let's fast forward.....After a year and a half, I did get better. No symptoms at all. It took a lot of work but I was a very good patient and never once cheated on my diet. It finally paid off and I had my life back. I could eat whatever I wanted, socialize, etc. I didn't have many friends left so I made new ones. I wish I could say I lived happily ever after but unfortunately that was not what happened.

I didn't count my blessings and about 1 year after the treatment I went back into my old patterns. Eating sushi, drinking wine at dinner, a few drinks here and there! My body held out for about a year and then you can guess what happened. Yes, it came back! I have no one to blame but myself and I did that for a very long time. Guilt was eating me alive especially when my six year old son understood that mommy was really sick.

I went to Matia and told her everything. Of course Matia did not judge me. As far as I'm concerned there is no one else like her. Not only is she a brilliant doctor but she is an amazing human being with a heart of gold. After talking to her I came to a conclusion that I need to look at this as a lesson and learn from this. What a painful lesson it is. I know now that no matter what happens i will always take care of my body and count every blessing that GOD ever gives me. As much as I want to be healthy and pain free again, I will say I learned a lot from this. Being healthy is a gift and we need to cherish our bodies and never forget what happened to us.

I learned to appreciate my family and learned who my true friends are. As for the lady in New York, I thank her for her time and even though she never gave me closure I see now how hard it must have been for her. I made her re-live everything that I'm sure she so much wanted to forget.

Stella

IC-Hope's picture
IC-Hope

Stella, thank you for so bravely and humbly sharing your story.  I know it will touch many as it has me, helping to keep us motivated and hopeful for recovery, as well as reminding us of the need to honor our bodies even once we're well, when the "yummies" of life and the steadiness of feeling well may try to tempt us.  I wish you a speedy & lasting recovery.

stella's picture
stella

To tell you the truth i was so sick all the time at first that i could not tell whene it was die off or if i was just sick. I didn't feel good evry day for a very long time . It took about 8 mounth for me to start feeling better. After that i had more and more good days. And thene agean feelt sick . The Agean sick part i think was Die off. And then After A year and a helf it was gone . All of it just like it came.

emmile's picture
emmile

Thank you very much for sharing your story! Going through this treatment and making all the changes is not easy.  It is most definitely worth it, but very challenging.  In a lot of ways I have had to completely relearn/rethink how I eat/live/take care of myself.  Although, I already knew I will need to continue to take care of myself beyond treatment (when I get there), your story really hit home the message that the changes I am making now need to be permanent lifestyle changes, not just "until I am better". And hopefully your story and others like it will help me give me the strength to continually work towards health even beyond my battle with IC! Thanks again!

toreyg's picture
toreyg

stella thanks so much for sharing your story! its so wonderful to hear from people who have gotten well. im so sorry u have to go through this again but u know u can be WELL! u know what it takes to get there ull get through it like  the rest of us.i was wondering if u had alot of die off in your first round of treatment?