interesting meeting

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I went to the normal doc today for a physical. I was telling the nurse I had IC.  She asked what kind of treatment I was in for it.  I told her I was seeing someone in LA, and it was the natural route.  She confessed to me that she had IC.  She told me she has been symptom free for two years after one round of having a medicine put up into her bladder with a catheder.  She gave me her docs name and sounded like she did not think what I was doing was going to work.  I think nothing happens for no reason, and I do not think this was a chance meeting.  I really feel like she might have her symptoms return in the future (she told me she can eat and drink whatever she wants) , and then she might be more interested in what I am doing.  Its so hard though, meeting others with IC that do not believe in the treatment you choose.   When you know what they are doing will not heal there body, it feels like you are between a rock and a hard place.  I was careful to not to make it sound like I did not believe in what she was doing, because I know that is not right.  But, I wanted to give her enough info on what I am doing for the future when she may have her symptoms return.  She did not seem interested though.  Then of course I left, and started thinking about how nice it would be to be symptom free after one quick procedure, but quickly realized, that is not my goal.  Total body healing is what we are after, not bandaids that fall off.   So, I was just sharing my interesting morning.

Tawni's picture
Tawni

Wow, this sounds too good to be true! I wonder if there is more to her story...maybe she didnt have IC for very long,or it was not as severe or involved.  Maybe she was just one of the fortunate ones that responded quickly to a treatment.   I have had medicines put into my bladder before that made my symptoms worse. Maybe the medicine was different, but I've never heard of any bladder installations being that successful...so maybe she was just very lucky!   And yes,its so frustrating when others do not respect or understand your choice for treatment.  With that said, if there was a "quick fix" that worked, than I'd totally go it!  IC is an awful thing to deal with!   I am pretty open minded about trying different things, but its scary that alot of the treatments can actually agravate things and make them worse in the long run. Thats great you are striving for total healing.  The most import thing is to find whats causing your symptoms and to find a treatment that is right for you.

Melsvensen's picture
Melsvensen

She told me she had it for 2 years, it started after the birth of her son.  I beleive she had the DMSO or however you spell it.  Just one treatment though.  I and not sure though she actually had IC, she told me the first urologist said she did, and the second said she did not.  But, the third agreed she did and did the treatment. She must be one of the VERY lucky ones, that it works for, but I cant see how all the other body symptoms that most of us have with IC would get fixed by that one treatment. Well, I am very glad it worked for her, and hope it never comes back!

IC-Hope's picture
IC-Hope

Years ago when I had mild IC, more towards the start, I believe this happened for me too.  I did one treatment and it did the trick..... for a while, til it came back.... No one knows for each person how long the results of a treatment, however successful, will last, or what the long-term consequences will be.  And even if long-term consequences arise years later, they might never be connected with their actual cause.