Forums:
So, I put this under "Spiritual" however, I think it would be more appropriate with a "psychological" heading as well. I notice that there is a lot of talk of"
1. being scared
2. feeling terrified
3. confused
4. anxiety
from many, including myself on this chat. I am so glad we have this place to come and get information, vent, and share. One thing that has become of particular interest to me was someone's post about the work of Marty Seligman and positive thinking. It is fairly well documented that stress (in the form of anxiety, fear, uncertainty, etc) causes a well known physiological effect in the body in some ways:
1. Release of adrenaline and cortisol. Cortisol [ it increases blood pressure and blood sugar, and reduces immune responses] all of those things, we ICers especially do not want. We need our blood sugars to be regulated so we don't get crazy cravings and do something wacky and we need optimal immune function. I can totally relate to you gals who feel "afraid" to try anything new in terms of food or are fearful of the feelings that they are feeling. I have felt those soooo much. I have seriously had to study some ways to change my point of view so that my stress is managed. I see my pain now as a good, and natural path to healing, rather than something to be afraid of.
2. Well documented studies show that people who are told a pain is going to be VERY painful will report increased levels of pain while others who receive the same amount of pain (in the form of a shock) and are told the pain will be minimal report almost no pain at all. I will try and find the study and post. What is most important though is how we view pain. I am not saying our pain is psychosomatic. Certainly not, however, I think our own personal view point of pain can either act like a natural tyelnol if our view is positive.
3. We release adrenaline and cortisol when fearful.. This is good in a sense that it helps us (or rather our ancestors) engage in the fight or flight response. Long term though, elevated adrenaline and cortisol in the blood is documented to destroy our organs. We are trying to repair the tissues in our body and this fear factor only destroys them.
Just wanted to post this because I really have gotten into changing my perspective from negative to positive in terms of how I see my treatment and IC in general. I am certainly not saying I am some master zen monk who has mastered this, but since I have started to make a change, I have noticed how much better I feel. I used to use the words, "scared" and "terrified" and "horrible" and "worried" all the time. Matia has a ton of those emails to back it up :) Since I have made a change.. I don't even say those words out loud, I have noticed a significant improvment in my reaction and perception to pain.
Soo... instead of telling myself, "I am terrified to try this new treatment" I say "I am excited to see the change"
Good luck friends! Your replies are always valued!
Jeanette
Thanks for this. I printed it
Thanks for this. I printed it off so I can read this on a regular basis. I have been in treatment about 9 months and noticed that you have been in treatment for a while. Have you noticed improvements?
i also think this is a great
i also think this is a great post...i am strugglin right now....can u tell me the name of the book u read again??..i kno u have mentioned it b4...thanks!!
I am reading "Learned
I am reading "Learned Optimism" by Martin Seligman. Very interesting read and very very subtle differences between being positive and a negative person. So for example, your post you said "struggling" maybe more positive is you are "challenged" For me I thought it was a dippy difference at first, but I thought what the heck and it really does make a difference! Good luck and keep me up to date with your progress!
which one?
there are a bunch on ebay...which one did u read??Learned Optimism, Books, Psychology. Great deals on eBay!
Being scared
Having a bad time - took zaanex last nigth for the first time in seven months- then went to my general practioner this morning and had a melt down - I was sure that the bumps on the side of my tongue were cancer - she assured me not, but asked if it hurt - which I said it didn't. Then, when I left her office, I realized that my whole tongue was burning. Then my head went into the crazy spin - I forgot to tell her....Oh, my gosh, what if I do have cancer?
My bladder and urethra, after five months of treatment, are so much better - my anxiety and compulsive obsessive has flared up to the point where I'm scared to death. It was really hard getting off of the zaanex and I don't want to go back on. Dr. M had me go off of the Genseng, thinking it could be contributing. Now I'm waiting for rehmanniae peonniae to arrive.
I guess I'm wondering if this has helped anyone?
Thanks,
Denise
yes, has helped!
IC is such a crazy disease! I know I have had these thoughts over the last two years, but every time Matia had been spot on. Every time I visit my GP or Urologist it's the same thing, take this or that! NEVER!!!! I have learned to trust Matia completely. I'm on list 4 now and feeling 99%! It takes time, but you will get there. Matia can get you thru this. We are all here, together. I have been on RP since the beginning. It's worked well for me. HUGS Tammy
Anxiety
I'm doing much better with my bladder/VV as well but I have to say that my stomach and anxiety issues- are a REAL big feature right now in my treatment. I know that the small intestine is source of our IC generally. The small intestine meridian in TCM and the heart meridian work together - the heart meridian governs things like our nervous system. They are buddy meridians - in that they work together and when one is out of balence the other is affected. So when we are making fundamental changes in the GI tract then the anxiety levels can get all triggered and stimulated - stirring things up.
I am experienceing this BIG TIME right now. whenever I get a stomach issue it immediately sets off my anxiety or vice versa and sometimes I don't have to have any visibly felt stomach issues- I just have a wave of anxiety out of nowhere and it passes. The never knowing when it will happen makes me feel crazy which doesn't help things at all! I now know what it is- but it is still really uncomfortable and can exaggerate the perceptions / appearence of unsual symtpoms - ( tongue bumps). BTW I have had inflammation in my mouth/gums before- burning and soreness and it goes away - just werid die off don't worry. Ginseng can be so wonderful and it can be a intensifier to certain things and that's why she took you off it I bet. I too have received great benefit from Rehmanniae Peony and find it to be deeply nourishing and soothing. I also LOVE how it tastes and take it out of the capsule to injest it in a little water- my body is like YES!
Check with Matia of course but the thing that has taken the edge off my anxiety has been a combo of deep breathing and a few dabs of lavendar essential oil on my heart and on my forehead ( third eye area) it seems to calm my racing heart down. Hope you are feeling better soon. what do other people do to deal with anxiety issues? This too shall pass. Love and gratitude to all - Mary
Thanks Tammy & Honeybee
Thanks for your response - it was nice having someone's ear :). I am feeling better today - no crappy zaanax last night.
All of you take care,
Denise