Bones, calcium, hips and joints

Facebook iconTwitter iconGoogle icon

Forums: 

Hi All,

I was just wondering if anyone else is having trouble with their joints? My hip has been giving me trouble. I also have difficulty with my shoulder. (Both on the left side) They pop and crack every time I move, and more to the point, they are a constant source of pain.

I notice too that my wrists and knees pop and crack a lot.

I am on list two of the diet, which does not have much by way of calcium. With a family history of osteoporosis I'm not really happy about missing so much calcium for so long. I've asked Matia if I could take a calcium supplement, but she has said no.

Occaisonally my hips actually feel like they move out of place, (Very painful!) and I have now been for an xray to make sure nothing is broken or whatever. I get the results next week, and I'm not looking forward to juggling Matia's protocol with my GP's "do this, take that." The two things never jive.

Is anyone else concerned about their bones or joints or bone density or having any trouble? Is there anything to be done about it?

Carole UK's picture
Carole UK

Before treatment I was on calcium supplements because a blood test showed me to be below the normal minimum.  I stopped these now that I have started with Matia.  (I haven't told my Doc)I now just eat loads of brocolli everday and hope that this will be good enough.  Raw or partially cooked brocolli contains a lot of calcium.I used to take Glucosamine and Chrodroitin for joints, its very popular in the UK and seems to work but I don't know if Matia will allow it.  I haven't asked yet, just assumed no.I am thinking that as I heal all these problems will get sorted.  ie. as the intestines heal we will begin to absorb nutrients like we should do.Also painfull joints could be a die off symptom.

Tawni's picture
Tawni

I've never had any problems with my joints, but I know its common for things like this to come up on the left side.  Maybe you can ask Matia about adding Greek yogurt to your diet for more calcium.  She allowed this for me when I was on 2 because I felt like I needed more protein.  Although, recently I've had to cut this and a alot of other things out of my diet.  Also, I know when we are sick with IC our body's dont absorb nutrients like a healthy person's would.

Hopeful's picture
Hopeful

Pain in my left hip only since starting with the diet six weeks ago. It comes and goes, but when it come it is VERY painful. It feels like there is something that has popped out of place. But then I will wake up the next day and it is gone? So I think it is die off, or I hope so! I have also had pain in my knees.Now I AM taking calcium and Magnesium every night. Matia knows about this and said to keep taking it for now... so I wonder if I will have to stop this sooner than later. I also have insomnia, so maybe that is why she let me keep taking it? Why can't we take in though? I think eating a bunch of broccoli is a good idea, which I do. Too much it feels like sometimes : ) 

Wen57's picture
Wen57

Vitamin D is, or is almost more important than calcium so if you are lucky enough to be able to get 15 min of sun a day (forearms and face) that is all you need.  If you live up north or work all day 1000mg supplement would be good during the winter esp. but I quit everything when starting treatment with Matia because some vitamins and minerals hurt.  But if you are feeling good and farther along she may allow. 
I do know tho- that absorption is a big part of this disease and calcium malabsorption is common with yeast and that increases osteoporosis.  The intestine bacteria gets all out of balance and we become deficient in lots of things.  We will be able to absorb what is needed much better as we progress.  The candida blocks our own cells from absorbing what we need, and causes holes in the intestinal walls for toxins to get through.  Until the candida is decreased and the good bacteria re-establishes (probiotics) it is probably best to keep it simple and avoid supplements. 

carole's picture
carole

Before I started treatment I was also taking calcium/magnesium supplements. Matia had me stop taking them and I never went back on them. I think the idea going forward after treatment is that if you are eating healthy and your body is in balance you shouldn't need to take supplements? During treatment I think that she tries to eliminate as many unknown influences as possible. I had a lot of joint pain when I first started treatment, especially in my hips, back and shoulder. My pain is usually on the right side of my body, which is so puzzling to me because it seems that everyone else's is on the left. My right hip and shoulder would pop constantly and they hurt most of the time. I also tore my rotator cuff during my first few months of treatment which was extremely painful. It took me about a year to rehab it, but it is now back to full range of motion. These days my hip and shoulder still bug me occasionally, but the pain is minor and it doesn't last for the entire day. They also don't pop very often. I was very worried about my hip pain because about that same time, my mom was having hip replacement surgery on both hips and she was about 20 years younger than the average age of a typical patient. I was imagining the same path for myself. My hips are so much better now. It used to be that I couldn't do much walking because it felt like bone grinding, and I would be sore for a couple of days afterwards. Now I can hike for hours without that happening.  Carol 

Melsvensen's picture
Melsvensen

I was JUST wondering this same thing! My nails are breaking terribly, and I have a lot of joint cracking and my bones feel SO weak since starting treatment.  I use to take Calcuim (it was formulated for IC bladder) so it did not bother me, but it really helped.  My nails were growing and strong and I felt stonger, but now  I am off it, I am very concerned about bone disorders to as I get older.  I am not tolerating most raw veges right now, so I am hardly getting ANY calcium, or much of ANY vitamin.This is a great question for the next call! 

icnot4me's picture
icnot4me

HiThis has been of concern to me as well since I don't tolerate many foods and have been on the diet for some time.  I eat a lot of brocoli and am finally able to tolerate Vit D.  Let me ask you this about the hip pain:  do you feel any tightness, soreness, stinging or aching in the "hip crevices"---the top of the hip where your underwear sits in front?  there are glands along there that can be dumping toxins or affected by die off and add to hip or joint pain.  Not that you dont' have any other issues going on, I'm just wondering if that could be aggravating thingsicnot4me

Pink Lady's picture
Pink Lady

Hi again everyone,
Thanks for all the feedback and reassurance. It's especially great to hear that Carole is at a point in her treatment that she's noticed a decrease in joint pain and cracking.
I hadn't thought to ask about an IC friendly calcium. Or vitamin D. I live in Canada, so this is not a good time of year to try and get even 15min of sun. Although the weather seems to be on its way to spring now, which will be a relief. I will definitely ask if I can take vitamin D.
Tawni: Greek yogurt, eh? I've never heard of such a thing. What's the difference between it and regular yogurt? I'm sorry to hear you've had to restrict your diet recently -- that's super frustrating!
ICnot4me: The pain absolutely is in the crevaces. Its mostly an ache or a sting. I didn't know there were glands there. That's very interesting. 
I know Matia has mentioned to me that our bodies don't absorb things properly when out of balance, but I can't help but think that some calcium, even if not fully absorbed, must be better than none?
There seems enough interest in the topic, that I'd be happy to bring it up at the next support meeting.

veryhappymom's picture
veryhappymom

 I developed hip pain before treatment.  I went to a physical therapist for pelvic floor problems and she said that my right hip was higher than my left hip.  Since my hips were out of allignment, it put more strain on my pelvic floor.  I also sleep on my stomach and notice more pain upon waking.  I think my hip would do much better if I could train myself to sleep in a better position.  I think hip pain is common with IC.

nicole's picture
nicole

the raw milk and the vit d has helped me a lot with this.. i still have problems but i had this problem most of my life and i am sure seizures didn' t  help also i used to play soccor and gymnastics.
the popping got worse durning treatment esp with my sholders make sure you tell her that was when she put me on the d it did get worse before better and i can't remember exactly what she said but it's quite common because of how the toxins settle and i wouldn't worry too much it's not forever just make sure you let matia know.