Length of treatment

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HI...

 Just curious how treatment is going for any of you? Is it really hard in the begining and easier as you get use to it? Has anybody gone through treatment in 6 months or is it more like a year or even more? How do you get use to eating bascily nothing? I mean you can only eat what you cook,right? So my guess is the change of life is dramatic,like no going out to eat with family and friends? How do you stop using the meds that you depend on to cover up symptoms? I take pain pills and if I didnt I wouldnt be able to leave my house,sleep,work ect.. I wonder if the herbs and diet make it so that it replaces the drugs and helps you cope too? I know that they are helping to heal and not just cover up. If your up to sharing your experience please do and thank you. ~ Michelle

nicole's picture
nicole

Michelle,
the lenght of treatment really depends on each person but just based on the fact that your dependent on painkillers doesn't seem like you would be 6 months that is considered very mild cases. Most people don't finish in 6 months. Some people get some really good progress in 6 months but I wouldn't say restored health at that point. It is more realistic to say anywhere between 1-3 yrs and some take longer.
About the diet it gets easier because your adding things as you progress and the more you adhear to the diet usually the faster your able to add things in. Some people find they are able to go out with the diet depending on what is available in your area. Where are you located?
As far as being concerned about dropping your pain killers or other meds Matia wouldn't have you just quit them cold turkey. That is something you and she and your Dr would work on doing. Don't let that discorage you from doing treatment.
For some the diet alone can be a big improvement and for some while it does help it's not taking away all the symptoms. I find for me I still have pain but if I don't do the diet I am in more pain. Another thing is hard not to compare yourself when your in this treatment. Everyone of us has a differenty history and some of us have been sick our whole lives so it will take longer to get back to balance. I am one of those people. Still even so I have come a long way.
most people see little improvements and that is what keeps us all going. At first I felt worse bc of all the toxins dieing off and I thought I was getting worse but this ended and I have had little signs to let me know I am progressing. I am sure others can fill you in on this as well. I dont want to sugar coat this treatment. It does work but it's slow and hard for some and really is dependent on each persons history.
if you have any other questions feel free to ask.

Wen57's picture
Wen57

I started with severe bladder pain Feb 2009.  After researching and trying antibiotics, NAET, many Dr's including family practice, urologist, 2 support groups, a nurse practioner, another MD, accupuncture, massage, yoga, Cystoprotek,  etc  I found Matia Oct 2009 and started level 1 diet on my own.  I made an apt Nov 2009, came home and started on her program.  I had the same pain Dec and then the 2nd week of Jan 2010 the pain gradually went away over about 2 weeks...and seemed to improve over the next months.  I stopped her herbs July 2010 but am staying on the probiotics and fish oil but only once a day or every other day versus my treatment dose of 3 times daily.  I am currently pain free and on no other meds (except my allergy pill).  
It did take a big sacrifice and lots of effort to maintain the diet for about 4 months but the pain made it easy to do because I had to get my life back.  It was soooo worth it.  When you are in pain and view "artificial foods" as part of the cause, you don't want to eat anything to make it worse.  There is so much protein, you will not feel hungry.  I ate steaks. turkey and pork roast with homemade gravy and mashed potatoes with water and butter.  I did go out with family and requested plain chicken, salmon, fish, or meat with salads or vegtables.  I also ate potatoes, brown rice, and lays potatoe chips. The restaruants used olive oil or butter. I steamed lots of brocolli, sauted lots of cabbage, zuchinni, and ate scrambeled eggs for breakfast almost daily. I ate lots of celery and cucumbers with salt too. There are tons of food ideas on ICAMA.  
Once I started to feel better, I gradually expanded my foods to lists 2,3,4,5 and found that I could now tolerate them.  I still avoid fake sugars, soda, high fructose corn syrup, and other highly processed foods with lots of chemicals.  But I eat pizza, hamburgers, fruits, choclate, etc with no problems.  I just do my best every day and eat in moderation.   
To get through all this I did use some Vicodin, pyridium, baking soda, and prelief but used the minimum possible to help control the pain.  They all helped a little bit.  Vicodin helped the most, but I could not use it often because I could not drive/work and I was afraid of using it more than a few times a week.
Good luck with your journey and I pray that you find health and healing. When I think about all this now, it is becoming a distant memory.  I lost 1 year of my life but I think the knowledge and research I did was life transforming and just beginning.  Be strong...you can do it too. 

nicole's picture
nicole

Wendy you should write your story. Its nice for those of us still plugging along to read about sucess.

michelleg's picture
michelleg

Thank you! I JUST LOVE TO HEAR ABOUT SUCCESS STORIES !! Thats what puts the hope and mental strength inside us.I beleieve at least for me anyways.Ive struggled for so long trying to convince myself to start treatment and focus on myself but NEVER get there. I convince myself that I'm there and ready to move forward and I findmyself crying and laying in my bed begging for mercy.I think after 12 yrs with my husband,3 yrs of on and off Im coming to honestly realize I'm more worried about getting his support than just doing it alone.He doesnt listen to me and would NEVER help me out by offering to cook or so forth.Its been a REALLY HARD battle.I always cry and wonder whyI dont have anybody in my life for me to lean on when I'm soooo sick.My best friend doesnt even talk to me,told people that I'm making up being sick.My mother wont even look into what I have and everybody else just nods and smiles.Nobody cares to give me any kind of strength when I'm more in need than I can put into words.SO I'm kinda realizing now that maybe I've been more focused on others approval and help than finding a way to focus on myself to heal.SO anyways this is why I enjoy hearing about the success stories.It makes me smile cuz I see so much strength in the words.It makes me feel good to know your living again and that I'll too one day be free from this monster.THANK YOU AGAIN !!

Hopeful's picture
Hopeful

I have been in treatment almost 8 months. I have had IC for a very long time, but have already seen inprovment. I still have a ways to go, but expected this. I had IC for so long, I am sure it will take me awhile to get back into good health. But I thank God that He lead me to Matia. She is so caring, and really knows what she is doing. I hope that if you aren't already in treatment, you will really consider going to see her. You would not regret it.
I have had some days since starting treatment, when I am like "Wow, my bladder is doing so good today!" I have been told that these become more and more as you start to heal. Also my pain has gone way down. I used to BURN ALL the time. Now, I have only had 2-3 times when I have burned like I used to in the last 8 months, and even then it was not as intense. It would be so bad I would just lay there feeling hopeless, and in so much pain I couldn't think about anything else. 
I am sorry that you deal with family members that are not supportive of you. And how hurtful to have friends that would be so cruel as to think it is all in your head. I don't say this just to pity you. You would be suprised at how many people on here have deal with the same thing. i know I have. You need support, and hope that I and others on here can give you some of what you might need as far as feeling like you have a place to go to vent or ask questions. You are not alone, and I am so sorry that you have to deal with this horrible disease. But there IS hope.
As far as doing the diet, you get into the swing of things, learn how to cook ahead... soon it will become second nature to you. I never sit and worry or wonder what to eat anymore. I am so used to planning ahead and or cooking something. The diet is hard at first, but gets much easier as you follow it. And there are places you can go out to eat. Like you could go to a steak  house and just get a fresh steak, baked potato with real butter and side of broccoli. I learn that calling ahead is you best bet. Then you can ask what they cook with/what they have.
I wish you all the best, ask any questions you might have.
 
Kelsey

Honeybee's picture
Honeybee

It took me a long time to get up the courage to commit to this treatment- and to echo the ladies here- it has been HARD but SOOOOOOOOOOO worth it. I have been in treatment since May 2008 and I am soo much better. I have been sick for a LONG time so I may have a litle while yet before I can say I am totally well but I feel pretty amazing- and I still have symptoms in my bladder and VV but even my worst pain is light years better than what a "good" day was for me a few years ago. When you are ready t move forward and ACCEPT wellness and health- and know that this is so possible - all the challenges and suffering will be transmuted into blessings of wellbeing and gratitude for how much you are going to appreciate your life. This treatment is more than just overcoming IC symptoms it ends up being a WHOLE life shift- where you learn to love and care for your body and to respect it. I am sorry to hear that you have little support. You have the inner strength inside to bear this condition than you most definately can do it alone- you can get support through this forum and there are always many counselors out there to help you too. Do not worry about gaining approval- my own family does not understand this treatment but they love me and see the PROOF that I am getting well. I am happier and therefore they have no problems with it ultimately. Its your LIFE YOUR HEALTH! I cook for myself and have learned to cope in thousands of ways. Yu get creative you make it work for you. Matia is AMAZING - the BEST care i have ever had from caregiver. What a gdt this site has been for me! I had a mild sense of pain releif initially but I truly did not get any REAL releif until around 18 months?  I don't have urgency- some of my sympotms improved in many ways and intensified in others during my process. that is normal but not the rule- I could tell I was getting better in many ways even as things intensified. For example my periods got better and continue to get easier. I have LOTS of good days now and I am determined to fully recover and be symptom free. I NEVER cheated and worked very hard and did EVERYTHING Matia said to do. If you have any questions feel free to email me- I have not written a success story because I dont' feel I'm quite finished yet. I thought I was too weak to do this treatment- I was wrong- I gained strength from this treatment and I gained a deep and healthy respect/love for myself too. Yes. you can be free too. Absolutely. Kelsey said it- you just have to plan ahead your meals. It becomes easy- second nature and your body adapts to the limited diet which gets bigger as you move along. I didn't know how to even cook for myself before treatment but I love it now! I'm pretty good sometimes too! - wishing you peace and wellness and strength  
Mary

Melsvensen's picture
Melsvensen

I started treatment 9 months ago. I have not had improvement yet in my bladder, but I have had IC for 5 years and I have been sick with gut issues since I was born prematurely my entire life.  Last month I went on vacation and cheated terribly on the diet as well.  For me, I feel better when I eat sugar because its feeding the bad guys, hence its SO hard for me not to cheat when I know it will take a way my pain when I do.  I feel worse when I eat healthy.  So, this treatment has not been easy for me at all, because my bladder feels worse with the diet as I am detoxing.  I know in my head though that the pain is a GOOD thing, because it means toxins are dieing.  When they die, they throw off toxins that can cause pain.  I still go out to eat, I have a good steak with no seasonings, a vege with no seasoning except butter and you can have a baked potato.  I have three children, 12, 2, and 3.  So, it has been a challenge with cooking, but I did get used to it.  The diet change, like anything takes commitment and time to get used to, but you will get used to it.  I keep telling myself its not forever, and I will be able to eat yummy things again, and be healthy too!  This treatment is not easy, and I have not talked to many people that it worked for in under a year, not saying they are not out there, but the majority it takes longer. The important thing is to NOT cheat, take it from a cheater, its not worth it.  This is a journey but we all have one another to help us with support.  Matia has a lot of experience and she knows what she is doing, you are in good hands if you choose this treatment.
Now, before I cheated I had lots of improvements in my body that were not in my bladder.  My joint and muscle aches improved, my sleeping, my energy, and my constipation.  That does tell me things were happening that were positive.
 

michelleg's picture
michelleg

WOW...THANKS GIRLS !!!! Im gonna print these replys  and post them up around my house.They really make me smile.Ive had IC for 11 years and  dealt with UTI's & bacteria Infections for years prior. Learning to be dependent on pain pills SUCKS !! I hate it and are allergic to them as well.However I rather deal with all the side effects from being allergic to them than the strong feeling of IC any day.I now have blisters and severe peeling on my hands and feet.I honestly think its from the pain meds.I know I will have a long road ahead of me when I start this treatment.Scared..... YES I AM. I dont know why I just dont do it and stop talking and constantly thinking about it ? Im the oldest of 5,in which I was practically 2nd mommy,lol.Then I was married and had a baby by 18.So I was still taken care of ppl.After that, which only lasted 3 yrs I ended up with another man for 3 yrs before I met my husband that I've been with for almost 12 yrs and my other child.SO I think I dont know how to fight for myself.Ive always taken care of others and told them what they need to do.I really think this is gonna give me more than just my health back.I think this is a blessing and will teach me how to love myself for once in my life. I thank Matia for this place for us to go to.I thank all of you for sharing your stories with me too.
This is a quote from a book that I have.It is a must read by James Allen and  is called "As A Man thinketh". Its soooo impowering !!!! Helps us to understand how much we are in control of our lives and so forth.Just in case anybody is looking for something new to read. :o)
         We are made or unmade by ourselves.By our thoughts,we forge the weapons by which we can destroy ourselves.Likewise,we also fashion the tools with which we build for ourselves heavenly mansions of joy and strength and peace.By the right choice and true application of thought,we ascend to the Divine Perfection;by the abuse and wrong appliction of thought,we descend below the level of the beast.Between these two extremes are all the grades and character.We are our own maker and master.

Vicky's picture
Vicky

Hi Michelle,
For me it took a little more than 1 year to really notice improvement. I surely had improvements from the beginning of treatment, like less bowel pains, slowly less period pain, better skin, stronger nails, better immune system,...  but my urethra pain was/is bothering me most and it took about 1 year before I really noticed a difference in the urethra pain.  At the beginning I had constant burning but now I'm slowly having more and more good days (as long as I stick to the diet, I'm on list 3 now). I consider myself as a mild case of IC, maybe because I soon started this treatment, but it can also take a while before you start to feel better. I still have a way to go, I'm struggling with other problems due to an accident (muscle pains) but the treatment works. Patience is very important at the beginning, reading the stories of other patients always helped me a lot! I wish you all the best.
Vicky

veryhappymom's picture
veryhappymom

I have been in treatment for 14 months.  The biggest thing that has slowed down my treatment was taking pain medications.  After being off them for a few weeks, I realize that my pain levels are about the same and I am sleeping much better. 
To motivate myself to go off the medication, I read up on them on RX list (the professional section).  Almost all of my medications had bladder pain and/ or frequency as a side effect.  When I took a medication like Tranadol or Neurontin, I experienced temporary pain relief only to have the pain return with a vengance an hour later.  I also was surprised that I slept much better after going off sleeping medications.
 

michelleg's picture
michelleg

I dont have pain just bad urgency and really bad flares all the time.SO the pian meds help to cover up the symptoms SOOOOOO MUCH.I eat whatever I want and just do anything I want because of how they cover the symptoms up so good.However I still have it bad, just not as bad without them.Im terrified of the  the symptoms without 'em. Ive realized also that Im addicted to them too.I DO NOT abuse at all.11/2 to 2 a day but its been this way for about 8-9 yrs. They make me really sick now too. Im allergic to them.My battle is how am I to do this treatment? IT IS SOOOOO HARD FOR ME AND IDK WHY? The thought of changing my whole life and only eating certain food  terrifies me.I guess Im very, very, very weak mentally.A part of me thinks that the pain pills are messing with my mind and causing severe depression. IDK? I know with all my heart this is the answer though.
I think when I joined on here you werent in treatment but was about to be meeting Matia? Do you have blonde hair?

veryhappymom's picture
veryhappymom

I have blonde hair but haven't posted a picture on here:o)

Melanie's picture
Melanie

Hi Michelle, I have been in treatment for 15 months now and am SO SO much better.  I've had IC for a long time, and like you years of bacterial and UTI infections before that.  I think for years I was sick, and just didn't want to admit the symptoms, because they weren't there all the time.  This month has been my best month ever in the last 15 months.  Most days now I don't even think about IC or my bladder.  I still get some mild symptoms a day or two before my menstrual cycle, but this month, even that is just about nothing.  I know I'm not 100% well yet, but I think I'm 90% there now.  This treatment works!  The diet was easy for me in the beginning because I was so sick, I had been told by others to try "going vegan" and for about four months lived only on vegetables, so Matia's diet was like a treat for me.  I moved quickly through phase 1 anyways and am now on phase three, with some of phase 4 included.  However, it is when you are well that the diet is harder to stick to.....when you are in pain and you know eating something is not good, it is easier to be disciplined then when you are well.  So that is my struggle now.  I just got back from vacation and did a bit of cheating, but now I'm home and back on track.  I loath to think where I would be if I hadn't found Matia last year.  Her knowledge of this disease is vast and accurate.......follow her instructions to the letter, and you will be well soon!  Have patience and courage.  Good luck to you!

natasha149's picture
natasha149

I've been in treatment for 2 years and 2 months. I go without symptoms 3 to 4 months a time now. I mean NO SYMPTOMS. The last time I had a bad flare was after using a new shade of Naturetint. I've been a huge fan of that company and have been using 2 shades 7c and 8c for years without any problems. And then I was feeling soooo good for so long that decided to try their new shade, called Copper Arizona and had a massive flare that took us 3 month(!) to calm. Matia thinks that that shade must have higher chemical content (hence more red). Since then I started using Light Mountain henna that Angela recommended, and have no problems at all.My issues were always mostly bacterial, and I understand "bacterial" cases might be harder to treat.But other than that I feel absolutely healthy: no constipation, insomnia, fatigue, depression, hemorrhoids, acne, anxiety or anger. Sex feels great again. I don't find a single hair on my brush!!!! It used to be really bad. I am sure I missed something. I am writing this and having a very hard time believing it myself. That is how sick I was for years, and it has all completely resolved. The most umbelievable for me are depression and anger, I was suffering since childhood. I am still keeping myself on list 3, evem though Matia allowed already many things from list 4, but I am waiting for my bladder to be more stable, no hurry, to me List 3 feels like heaven :)

flygirlsam's picture
flygirlsam

I've been in treatment for 14 months.  When I started I was told it would be about a year before drastic improvement and I do believe that was about right.  I was told I had a moderate case of IC.  For me, I will plateau for 1-2 months and then I'll have some really good improvement for 1-2 months and so on.  Sometimes I'm not sure if it's because I ate a lot of red meat that month or maybe wasn't as dedicated to the diet due to travel and work one month?  Not sure.  But I will say, I can now eat COOKED TOMATOES and this is truly an amazing thing as who ever would have thought we IC'ers would eat them ever again?  I can eat them with no pain whatsoever and am astounded.  Matia is so smart and wonderful I know this is the best place to find true healing.  I still have some stubborn symptoms that just won't go away, but they are way improved from 6 or 12 months ago and we continue to work on them.  And each month I notice little things like, nails growing well, less PMS, better sleep.  It's all good stuff and all signs that you are heading down the right path by being here.  The other day a friend I had not seen in a few weeks said to me "You look different, what are you doing?"  I said nothing really different than a few weeks ago.  He said I was glowing and looked better than ever!  He doesn't even know what I've been going through with IC or Matia, so that was a true testament that something is working! 
Good luck!

camille's picture
camille

This is my second time in treatment (I had a period of about 8 years in between of no bladder symptoms).  It is 18 months.  It took about 16 months, and then I experienced a period of almost 8 weeks where I thought my main symptom of urgency was gone. For the last 6-8 weeks it has come back again.  I kind of remember from being in treatment before and reading other stories and posts, that this does happen.  I still beat myself up anyway –– "what did I do to ruin it?".  I find it SO hard to maintain all the abstinence from everything.  When I started flaring again is when I got too confident.  I tried lattes again.  I talked to Matia, and she thought maybe it was everything I was putting on my skin –– I had been using some essential oils on my skin as bug repellent because the mosquitoes got SO bad this summer here in the midwest.  Also, I was using things like sun block on my children, and she said absolutely non of these things on my skin, unless they were approved by her.  I'm still not sure exactly what it is, or why it's taking so long to get back on track, but I'm sure I'll get there eventually.
This treatment takes a lot of patience and persistence.  Hang in there, b/c it works. I know from being through it once before.  I tried a lot, as most others have, before I found Matia back in the early 2000's.  She got me better than, and that was before her PhD. She is a miracle healer. 

aberger's picture
aberger

Hi all,
I have been experiencing symptoms of IC for about five months now.  I have some urgency, an inflamed bladder and pelvic wall.  I had suffered from chronic  UTIs for several years before coming down with my current symptoms. I used antibiotics to treat my UTIs and was on birth control for about a decade.
I have not yet gone to see Matia due to financial constraints.  I am normally very careful with what I eat and tend to stick to an organic, seasonal diet.  I stay away from corn syrup, sugars, processes foods, etc.  I am not taking any medications to manage the pain or symptoms of IC, since I learned that IC can be caused by repeated antibiotic use and the pill.  I don't want to further aggravate my symptoms with other medications.
I have been following Matia's diet for the past week or so and have noticed some improvement all ready, although my urologist insisted on a cystosocopy which I think set me back.
Like Michelle- I am tyring to figure out how long treatment takes.  I don't know if this is allowed-but any idea how long treatment might take for someone in my situation?
Looking forward to your repsonses.
Annie

emmarenee's picture
emmarenee

It varies so much from person to person. I have been in treatment with Matia for almost two years. I am now on list 4, and live day to day relatively symptom free. Not so in the beginning of treatment. My main issues have been urgency & frequency. I found this site very early in my symptoms, and started the diet immediately. About 6 months into the diet I felt better, but didn't think I would fully recover until going out to see Matia. I did this in late Oct 2008. Matia was great. Yeast die off was no fun. I had been on birth control for 20 plus years, and yeast was hard to get under control. I continue to get better and better. Matia understands this disease like no other person. Find a way to go and see her. She will change your life. Good luck, Tammy

porkchop87's picture
porkchop87

HI everyone...I am twenty three years old and was diagnosed with IC last summer,
 
So I have never posted before because I thought I had enough self dicipline and family support to make it through the diet. I was wrong....  I only made it five weeks on stage one and was feeling great then I blew it. I accidentallly left my accidophilus out in the sun and killed the bacteria, so even though I was following the diet my bladder was killing me. I got really upset and then thought to myself " I just don't even care anymore and ruined it". It was the worst decision of my life.  I keep trying to start the diet over but I only make it two weeks and then lose the self discipline.  I have read everyone's posts and it made me realize that even though I don't know any of you I feel like you understand and get what I am going through.  It is hard on my family because I get so upset and say they don't understand.  So I am looking for support from my fellow IC patients. One of my biggest concerns is the food list on stage one.  I just could not come up with very many different ways to make recipes off of stage one.  I know there are recipes online but I felt like they were too advanced for stage one.  Any ideas?????  Also I would love to have a buddy to talk to that is starting the diet or that is on stage one,
 
thanks for your support,
 
portia

mao1981's picture
mao1981

 
Portia,

I have only been a patient for 4 months and I certainly don't have all the answers, but what I can say is that it gets easier as you go. The cooking, eating, and overall commitment, while not feeling well has been one of the biggest challenges of my life, but as the days go on it is also one of the most empowering experiences I have ever undertaken. Making this choice is the difference between enjoying a long, healthy life compared to one of pain and suffering (whether with this condition or another which develops out of not taking care of oneself). It is no coincidence that the cases of chronic illness are spiraling out of control and it all goes back to how we take care of ourselves. I can only imagine how challenging this is for you-being so young, but you are not alone. Many of us are in our 20s and I try to look at this as a HUGE wake up call, that if this hadn't happened something worse would have been waiting for me down the road (not to be too doomsday-ish). A very wise patient imparted a few thoughts that I would love to pass on:

 
There is a light at the end of the tunnel -there is health and sometimes your path will run parallel to another patients and at times it will not. Honor and respect where you are- accept that this condition is happening  accept without bitterness what is happening but know that it is not an indefinate endless curse.  Accept TOTAL responsibility for this condition and all that you need to do to get well but also accept that the solution/resolution is already at work. Be willing to let go of so much that you do not need anymore-fear, anxiety, self destructive eating, etc etc- let it go. There is no randomness. I believe every illness that exists also has a solution. For me- I think that this whole experience was exactly strangely enough what I needed. BUT I  have learned what I need to learn with this illness. I am moving on now. It is safe to be well. I know how to take care of myself so it doesn't come back. It is not going to come back.

Keep in mind that the longer you stick with the diet the quicker you will move through the lists. List 1 is really, really hard, but once you get to List 2 it is SO much easier. I have been on list 2 for months and rarely think about moving to the next list. On list one, I ate a lot of ground buffalo seasoned with garlic powder (I found I like buffalo much more than hamburger) on top of butter lettuce with a little sprinkled sea salt and olive oil- a big salad of sorts (and you can add whatever other veggies you can eat to it), I also still eat a LOT of cabbage. If you chop up cabbage and grill it in butter, garlic powder, and sea salt until its soft, it is great! I ate (and still do) egg white omelets or scrambled eggs every morning with a piece of spelt bread and lots and lots of celery for snacks. Trader Joes also has GREAT rice cakes, they are lightly salted (Trader Joes kind), which I live off of: ingredients: brown rice and sea salt. There are also potato chips you can find on amazon (Good Health Natural Foods potato chips- flavor: Sea Salt) that are truly the best potato chips I have ever had: http://www.amazon.com/Good-Health-Natural-Foods-Potato/dp/B003ZW9SPS/ref...

Of course these are just a few suggestions and not everything will work for everyone, so try them out, but most importantly remember that you CAN and WILL do this and if you fall down, we are all here to catch you. One last parting thought from the same patient, who cheered me on:

Here's what you do- you do your very best each day. This is deep chess -but all you have to do is relax into the treatment. Let it do its work. It may feel like nothing is happening but I assure you IT IS.  SLOW DEEP THOROUGH work. The effects/progress are cumulative but the BIG JUMPS in progress you crave to happen - they will be felt later on in a big way.

MM
 
 
 
 

alexandra's picture
alexandra

Hi Portia, 
I am also 23 and it is really comforting to see someone with IC who's my age.  I was diagnosed with IC a few years ago but suffered from chronic bladder and kidney infections since i was born. I am currently going through installations after trying a number of different pill treatments.  Installations are incredibly painful and don't seem it be helping more harming my body.  I have previously tried these specific diets with a natroaphth.  The diet made my body feel better and more alive, but it was not specific to the IC and didn't help with relief from that.  It was for stomach issues brought on by the medication which was never connected to the IC until recently. All in all I would love to give you some support on your diet if you are still suffering.   I had a hard time at first with the diet but was able to turn it around.  I began to really enjoy and take pride in very simple fresh food dishes.  The food your eating is of such natural from the earth quality rather then processed and containing foreign ingredients never meant for consumption. Theres a ton of great books on raw food, gluten free diets, celliac disease that i found very interesting that you can take ideas from.  It just really what you want to put in your body and the effects that they have (especially when your so sensitive).  The only way I followed my diet was by believing in it rather then thinking of it as a chore.  I like the whys behind things, not sure if your the same way but thought I would put it out there. 
I am trying to find alternatives to my western doctors as I have only gotten worse since I started taking medications.  I was only antibiotics for the last 6 years daily, after years of infections.  Dr. Brizman sounds unimaginable.  I am currently trying to figure out a way to get to LA.
I just wanted to write you and see how your progress is going.  I am a couple steps behind you but its so comforting to see someone like me. Thank you for sharing your comments and I wish you all the best!
 
Alex
 

porkchop87's picture
porkchop87

HI Alex sorry I didn't reply sooner, I read your post and was also very excited to know there is someone my age with IC in Matia's treatment.  How is the treatement going for you so far?  I was traveling for six months rock climbing and not sticking to the diet to the extent that I should have. I was taking the wrong herbs for a long time and had no idea until I was still having a lot of pain and then realized what I was doing wrong.  So Matia has me starting a new regiment to get back on track. This treatment has been really hard for me, and my willpower has not been as strong as I need it to be.  I realized I need to focus on getting my body healed before I can focus on anything else.  I have been reading a lot of quotes on personal goals and self help.  I am trying to focus on the things I am grateful for and lucky to have rather than focusing on how unlucky I am to have IC.  The more negative I am the worse I seem to do with the treatment. Man I think it is amazing you have stuck with the diet and it helps me to see that you have. I look up to the women and men on this forum that have fought through treatment and are on the later stages.  They are a huge inspiration to me.  Where are you from? I live in salt lake city, Utah. I am not sure if there are any other patients of Dr. Brizman from here.  I would be interested in keeping in touch with you as a buddy!  It is so nice to meet someone my age to talk to. Write back to let me know how everything is going for you. 
 
Portia

Carole UK's picture
Carole UK

That is such a good post MM.  I couldn't agree more.
Matia once said we are lucky to have IC because it gives us a chance to turn our lives around and look forward to a much healthier future.   I often think of this and feel so grateful for having found ICAMA and also to have Matia to guide me through this.
List 1 is tough but its OK once you get into it, I am on list 3 now but I always got by on list one by having lots of allowable food handy.  Try not to let yourself get too hungry, that is when your willpower will be weakest.  The zucchini muffins in the vegetable recipe section, they are delicious cut in half and toasted.
Remember the body detoxing can cause some bladder issues so never think that the diet is not working.  Its a matter of pushing through.  Evenually the symptoms become less and you will start to feel better.
If it is at all possible for you to become a patient of Matia's I would urge you to do it.  I travelled from the UK to see her and now I have long distance telephone apts.  It is the best investment I have ever made.
I am nine months into treatment and some days I feel great, some days arn't so good but they are becoming fewer.  On the good days I feel so well that I realise I had forgotten what good health is like, and it makes me even more determined to see this through.
 

porkchop87's picture
porkchop87

Thanks so much for replying to my post.  Reading your posts has given me a lot more hope. It is good to know that stage two is that much better so I have something to look forward to.  I am really really excited to progress and get better.  The potato chip suggestion is a great one along with always having food onhand so I don't get to hungry.  Thanks for your help.  :) 
 
portia

izambrano1's picture
izambrano1

I am anxious to meet with Matia, but at the same time I'm afraid. I've had IC for 12 years.  I have had may struggles in my marriage due to my depression.  I feel I have no hope.  I will give my self one more try with Matia for my children and my family that are suffering to see me go down due to this horrible disease.

Veronica Solano's picture
Veronica Solano

Hi. I have also been with IC for 14 years and found Matia 2 years ago. Is has been very hard but i have had some improvement. The first year i was even feeling worse and almost left treatment. Matia was always there for me, she is great. I have a long way to go but i will never stop. No matter how long you have been sick if you do the right thing in time things will be ok!! You will be happy again and will laugh many times with your family. Pls have hope and trust Matia.
Love
Veronica
 

izambrano1's picture
izambrano1

Two years is alot. What kind of improvements have you had?  I'm getting more scared

emmarenee's picture
emmarenee

Matia will tell you how long she feels it will take to feel improvement. She has been treating IC patients for many (15?) years. Some people show improvement quickly. Others may take longer. It really depends on what caused your IC. Don't lose hope. You are on the right path. One day at time you will heal.
 

Veronica Solano's picture
Veronica Solano

hi. After 2 years my digestion is better , i sleep better, i went back to work, i smile again, i am not constipated. i have sex again sometimes. i can travel a little, and i dont feel my life is over....It is hard for some people but i agree everyone is diferent. The most important thing is that there is hope...........Pls dont be scared and start your treatment as soon as posible
Veronica