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I have been in treatment 13 months and am feeling worse than when I started. I would like some stories of experience or encouragement please. My main symptoms are urge and frequency. I have recently developed burning as well so I worry my ic is progressing. I felt improvement in months 5,6.7 but now feel symptoms almost constantly My period has always been my saving grace during the month with low symptoms and this month my period was even miserable has anyone had a similar experience I know symptoms aren't always lateral but is feeling worse this far into treatment normal
I've been on and off the forum over the last couple of years since starting treatment. The protocol has worked really well on me and I'm in the very latter stages of healing. Am generally symptom free 90% of the time as long as I stick to list 4-5 of the diet and look after myself. I've just really strugged to get past this final hurdle though. I can probably speculate that it's due to getting lazy on the diet a lot now that I feel mostly better and should just really tighten up on that for a good few months to really let the final healing happen.
I just thought I'd share this in case it might be of help to others. I've been struggling a bit with sticking to the diet as of late because I've been going through some difficult personal issues. Cheat foods and binging have become a bit of a crutch (not often, but enough to be a problem). I rationalize it by telling myself that I deserve the cheat because I'm going through so much. But I just had the realization that cheating on the diet is an act of aggression against myself. In dealing with my personal issues as well as my health, what I deserve is compassion, kindness, and healing.
My probiotic says Superdophilus on the front, but Lynn said it would probably be called Megadophilus other places. So would you say I'm on Super, not Mega? Also, I noticed my bottle says step 1 of 3....is the probiotic a 3 step process? Just trying to figure out how all of this works.
What do people do as far as pregnancy? I'm not comfortable just taking JP as a prenatal vitamin. Has anyone taken one other than this or does anyone know of another approved one that has methyl-folate as opposed to folic acid?
I just want to share some hope. I am at 21 months treatment, and though I am nowhere near the healing I thought I would be by now, I feel hope that I am getting better. I think for me the struggle has been thinking I should be healed by now, and worrying that if I am not, that I never will be. However that just isn't true because some things have healed and subsided. So I want to publicly reality check and share some hope and tools that have kept me sane and even happy:
