Hi Ladies

i haven't posted in a very long time on icama. I am 22 months in treatment & have seen the biggest changes with my mood & anxiety. I was having panic attacks & really couldn't get out of bed before all this started. My anxiety is virtually healed. The mind racing, not sleeping & horrible worry that something terrible was going to happen all of the time is gone. I feel positive strong & able to take whatever comes. 

Hello everyone! Back in need of help with figuring out what to eat. I am totally grain, potato, egg free and going to cut dairy, beans and almond butter (don't eat any other nut butters) once again! :( The food I am going to try to really stick to to limit inflammation and pain are zucchini, bison, avocado, salmon, cooked celery, baby corn and cabbage. I am lost at what to eat for breakfast. I find meat too heavy early in the morning and veggies less than appetizing before leaving for work at 6:00. Need some creative minds to help me. Thanks!

Is there any chewing gum out there we are allowed?  I am a newbie.  Also I made a soup with the allowed veggies...I know we cannot juice but is soup ok?  Thanks.  I have tried to read all the blogs but didn't see anything on these 2 things.  I have ordered Dr. Brizman's dissertation but have not rec'd it yet so sorry if the answers are there. 

Like many of us, I have more than one western Medicine diagnosis.....IC and POTS Syndrome. As you have progressed through treatment, have your "other" conditions gotten better? Did it generally get better before or after your bladder did? I am interested in hearing from others experiencines........

I love it. I do not drink a lot but it is my best treat. I took it out for about 3 months when I first Got IC, but put it back in when I read on this site that so many patients were ok with it. I have never noticed any reaction per say from coffee, although my symptoms are crazily unstable so it always hard to tell!

For a long time, I have had issues with flaring at night which is bad enough but the weird thing is this:sometimes, I have had a decent day and then when I lie down to sleep- suddenly I flare and then it is hours before I can sleep. I am getting to the point where night is an absolute terror for me because I don't know what to expect. When I was having my good spell recently, I did not have this and went to sleep so easily and peacefully. I am afraid to take my dose today and afraid not to. Does anyone else have this happen and why???

It is hard to "keep positive"

And actually I don't think that in itself is a goal. I truly do NOT believe you can 'think" yourself well OR sick. I started this protocol absolutely convinced that I would be better within a year. Herre we are almost 3 years later and I am still struggling but hoping I am gaining momentum and always keeping the little spark of hope lit within that tells me I CAN and WILL be healthy someday.

So many of us have inner corners of our eyes with noticeable red capilaries. I beleive Dr. Brizman says this will resolve. Inner corners are bladder, and out whites are gallbladder and other things I can't remember. Anyway just wondering if the whites of your eyes have improved in treatment. The color part of my eye is lighter which is cool.

Hi everybody,

I have been reading many post in the last month.  I dont think i have IC therefore i still have urological symptom.  Here my quick story:

Hi everyone- I have been doing really well (more on that later when I feel more confidant!) but anyway the past few days I have this "hot patch" on my left hamstring!! I first felt it the other day when I was sitting with my son  and I htought he has his hand under my leg making me feel heat but it has been coming and going at all kinds of random times. It feels like a heating pad on the back top of my left thigh. I have had a bad cold followed by a stomach virus this week (also weird) which is prob not related