Hi everyone. Dr B put me on rhodiola today ... she said Eclectic Institute (brand) is the best but otherwise any one I I could find would do. However, the one I got (while I think it's a good brand) is only 100 mg and I see the Eclectic one is 500 mg. Should I presume that I should take five of mine for one dose?? I will email her to check, but I'd like to start taking it tonight as she wanted me to start it soon because of the flare I'm in.

Thanks,
Megan

Hi Ladies,

Does anyone know of Dr. B addresses parasites and heavy metals? I believe I have both. Ugh. 

Any grain makes my bladder burn, even rice. The only thing I can tolerate is potato and I´m getting bored of it. To those of you who had problems tolerating grains in the beginning of treatment. How long did it take you to be able to eat them again? That´s probably a stupid question as we all are very different. But just sharing experiences would help me. I´m scared that maybe I will never be able to eat those again.

Tried to write this post before a week ago and I lost it before I posted it. Until last Monday, I spent  10 months in horrible anxiety without a knee diagnosis. Now I have one. cartilage is shot and I need to have both knees replaced. Pretty terrifying but at least now I know. In the intervening time, I stopped sleeping, like totally stopped  for 2 weeks and broke down and went on sleeping meds after trying 6 different ways with Dr. B to take an herbal approach. No go. So I went on klonipin for about a month and then tapered off. (Over 3 weeks).

Tried to write this post before a week ago and I lost it before I posted it. Until last Monday, I spent  10 months in horrible anxiety without a knee diagnosis. Now I have one. cartilage is shot and I need to have both knees replaced. Pretty terrifying but at least now I know. In the intervening time, I stopped sleeping, like totally stopped  for 2 weeks and broke down and went on sleeping meds after trying 6 different ways with Dr. B to take an herbal approach. No go. So I went on klonipin for about a month and then tapered off. (Over 3 weeks).

The forum is a tricky thing. People usually only post when they feel bad. The problem with that is that while Matia has treated 100's of patients over the past few years, the forum only presents the tough cases where people are still in pain, even after being in treatment for a long time. 

I would love to hear some new testimonials! The ones posted are very old. Anyone symptom free ever?

Dr. B started a new protocol with SF 722. First day was great. Second day is unbearable. No break from the pain. It really makes this new email system so hard when we have a flare or UTI :(

I don't know whether to stop everything till the morning, or take the herbs that I took to get out of the flare last time. Ugh. I took the herbs that helped me last month to get out of the flare but they are not helping. I am drinking a ton of water and I guess I just have to remember that this will pass. It. is. horrible.

Today I had an appointment with Dr B. It is never long enough. She still doesn't understand why I am so bad after all this time. I have none of the complicating factors she usually sees. My IC has not improved and sometimes I think I am worse than when I first saw her. The only thing she said was that because of the neck pain (that started AFTER I started treatment) that shows that there could be some internal energetic blockage that is holding me back. This is a nightmare to me and I am having a tough time figuring out how to think about this.

I'm up in the middle of the night sitting on one leg just to try and get comfortable.  I have now had 1 UTI last month and another this month.  I can't handle this!  I am trying the Gan Mao Ling and Ginsing, but it seems the Gan Mao that the "other" ingredients are artificial and may be making things worse.  I plan on emailing Dr. B tomorrow, but I don't know how to get thru these episodes.  I haven't had back to back UTI's in 10 years.  I've had IC for 13.  Help, help, help!!!