Hi Everyone,

I am presently on vacation at a resort hotel with my husband's family (where I have been unable to respond to personal emails sent to me as my I-phone will not let me send them out - so please forgive me - I will respond as soon as I return!).  

Ally:

You won't give up. We need you too much. Everyone of your success windows is a ray of light for the rest of us. We won't even let you think of giving up. I called and texted you three times today. Think how much I am going to bug you if you don't check in soon on ICAMA. There is no where else to go. YOU ARE MAKIING HUGE PROGRESS. Bonnie

PS Evie and Chris won't let you.

Can't seem to find my positive strength inside of me today.  I have such terrible vaginal burn (vulvodynia) and whole body itching lately and I am just so tired of waking up and making it through each day sometimes.

I am at the 17 month mark.  Just spoke to Dr. Brizman and she told me I could start list 3.  How can I when I am in such pain.  How will I know if it is the new food or just my body going a-wall.

I hold onto to hope and frequent this blog for support and such heartfelt kindness that all of you share and give so as not to go down this path of despair.

Hi all!

Hi Girls, i´m fairly new here and i´m not even a patient of Dr. Brizman yet. Just finished filling in her patient form and now waiting for her reply. My symptoms started a little over two months ago and i was put in hospital during this time. they told me its all psychosomatic and i have to go in therapy. after i was released from hospital 2 weeks ago i start my personal research on internet and discovered that i have the same symptoms like ic-patients. and i freaked out. my boyfriend got so mad at me for being to hypochodriac.

My opinion on Lyme's is not much different from any other of these chronic infections that accompany IC. The body's immune system needs to be in tact to make "neutralize" any chronic infection. I have seen repeatedly that working with the immune system is the way to combat any chronic infection such as with the work that I do rather than hitting the infection with antibiotics. HBO may be also effective, but I think that although it is a great therapy, it is not a comprehensive therapy alone and I do not know how it may effect what I am doing.

Hello sad bladder friends :)

So I just got started on a combo of oil of oregano, ultra omega dha/epa, megadophilus, and goldenseal. I was having terrible stomach problems which have been greatly reduced by this mix, however the stomach issues seem to have traded places with bladder issues.

I've peed about 7 times so far tonight and am so jittery I gave up sleeping about two hours ago. It is now 3:30am.

Hi- I am in the middle of a terrible random flare. I sent an email tonight although of course I know she won't get it tonight.

I got back an automatic response. Should I assume my email will go through or should I write another?

Please- no negative people complaing about the system- can't handle that. I just am wondering if anyone knows how it works.

Well all my inflammatory markers are normal, I don't have a rheumatic disease and so I am a medical mystery to the west. Just have very inflamed knees that don't like weight or movement. hmmmmm....