Hi all

I'm new here and I just recently found this page. I have never been diagnosed with IC, but having bladder symptoms.

I'm thinking about going to see Dr.B, but it is a huge decision, since I live in Sweden, and it will cost a lot. I'm also a bit worried, since my main and worst pain is not the bladder, so I'm hasitant if she will be able to help me or not.

I am experience a whole list of symptoms, and it would be nice to hear if any else are experience other symtoms besides the bladder.

These are things that I feel ALL THE TIME!!!!

I know that we are all differen but did anyone (everyone?) start out with constant symptoms? For me, I have constant bladder pressure and inflammation. When I flare, it gets worse but there is never a time when I don't have symptoms. Is anyone else the same or do you have periods/moments of normal bladder sensation among bladder pressure/inflammation/pain?

OMG, today is my 6 month anniversary in treatment!!!

I knew my period would start today because I have an app that tells me when it will start. So I am sitting here waiting for the sharp stabbing pain, and the big flow that happens every month. And it just wasn't happening. Then I decide well let me just go to the bathroom and put on a pad, so that way when it comes I am prepared. Well I went to the bathroom, and to my amazement I had already started!

For 3 months Dr B has suggested I start list 3 and then I tell her I haven't really gone through list 2 and she says "ok take that slowly and then start list 3" but usuallly I have just changed an herb so she says wait until you feel stable before starting list 3. I am starting to go nuts because I never get to list 3. I have said before my symptoms are manageble most of the time but I haven't seen that huge improvement that allows me to try stuff without fear. ALso I am still so up and down even when my basic level seems to be mostly better.

Hey everyone! I was wondering if anyone else is taking RP and how they did with it at first. I have been taking goldenseal root, megadophilus, and siberian ginseng. Matia started me on RP and I feel like my bladder got much worse and my inflammation and feeling of being swollen got worse all over my body. Has anyone else had this experience. I told matia and she staid to stop goldenseal and stay only on mega, RP, and ginseng.

Any imput would really help. I have searched old posts.

:)

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If you are depressed, you are living in the past

If you are anxious, you are living in the future

If you are at peace, you are living in the present.

may peace be with all of you today and everyday!

Hello ladies,

I have not been diagnosed but suspect I have CFS and fibromyalgia. I know that these are pretty common with IC. I used to be in the 'bladder pain only' camp but have now added the above two to my list of ailments. Does anyone have these too? Did they progress for you? Is there a way to nip them i the bud, before they progress? Most importantly, how did you/do you get rid of them? Any tips greatly appreciated. Is exercise good, for example, or will that cause problems for someone with CFS?

So I paid my dues and scheduled my first appt to see Matia on April 6th. For some reason I feel more scared than ever now that there's a set date. I have so many doubts and fears and am so afraid that it's not going to work. I am so afraid to be taking care of a newborn while going through treatment, I keep hearing that it gets worse at first. I can't bare for it to get any worse than it is now, how will I take care of my baby, follow a strict diet, and suffer more pain? Help! I hate when I'm in despair like this, it doesn't help that I woke up with sore throat/congestion/body aches.

Ok so I have a quick question. I know part of the diet is avoiding supplements but I am pregnant and am taking prenatal vitamins. I feel like its adding to my issues but really don't know if there's a way around it. Don't all pregnant women have to take prenatals? Obviously I want what's best for the baby even if it means suffering for 9-11 more weeks, but was wondering if anyone had any knowledge or insight to this.