hi everyone.  lately my throat is so swollen in the back i cannot swallow!  im so frustrated and afraid that its going to keep swelling.  matia just dropped my dose and im hoping she'll drop it more--anyone else ever have this happen?

Hi everyone! This is actually my first time posting a topic on any of the forums even though I have been in treatment for almost a year.  I'm a bit shy by nature and am not quick to reach out for support.  (Though I frequently read and enjoy other forum topics and reponses).

  I need some advice about going off grains.  My IC pain needs to go done more and I am thinking of going off grains (spelt, kamut) for a while.  How long does one need to be off grains to notice a difference?  Also, what do you eat in a typical day?  I had been eating a lot of spelt toast and noodles.  I especially need breakfast and snack ideas.  Thanks.

Has anyone else had bruising issues in treatment?  I've had all kinds of bruises show up all over my body, many of them I either don't remember their originating injury, or they are just surfacing from my system, or from past wounds.  And they take a very long time to go away.  

Since it's summer and they are often exposed, a lot of people are pointing them out to me, being very concerned, and asking me if I've had a test for anemia.  

Hello Everybody!
It's been a while... I haven't written or even checked up on anything on icama...
I've just been keeping it all inside, because the depressing fact is that I am more than a year into the treatment and not doing so well. There have been ups and downs, and sometimes, I think "this is it, I am doing a little better" but then, the roaller coaster takes me down again.

Hello All,

Just wanted to pass along an AMAZING book for you to read!  If you are anything like me, I really like to know what is going on with my body and why it is happening.  On a suggestion from my sister, I picked up "IBS for Dummies" and started to read it.  I think we all have accepted that IC is a disease stemming from dysfunction of the intestine, so I thought... what the heck.

I know someone already mentioned eye twitching in a earlier post somewhere, but I'm wondering if anyone knows the reason WHY?  What is the connection with the treatment and the twitching?  
I've been with Matia for almost 2 months and am on list 2. 

I'm having some leg pain--first my right leg was tingling--then sensation was dulled and now its KILLING ME.  The pain is around my hip and around to the mid theigh.  Anyone else ever have anything similar?

Has Matia worked on any of your husbands and boyfriends for yeast. How was the process? My boyfriend has yeast and I got him to quit drinking and the soda but not the sugar intirly he is very moody and is having die off headaches. I have an apt with Matia on Friday they have met and he has been a patient in the past so I know she can offer me advise but I just wanted to know if any of you have been through this process before is it as slow as with us that have IC. He doesn't have the strenght that i have and I want to see him stick this out.