Hi Ladies,

I'm starting to have the first signs of a cold. Matia told me what I need to take, I just forgot to ask her for how long. I thought it would be faster to get an answer here. =) So when do you stop taking the herbs for the cold?

Thanks!

Hi all, just wanted to post because I feel low and I've tried pouring my heart out to my family, bless them they do try but they just don't understand. I'm not really looking for sympathy or pity, I just need to let it out before I go crazy or more crazy should I say! I guess I need some encouragement, again. Sorry to be annoying and moany. I find that I very quickly tend to forget the positivity that's needed and instead indulge in negative thoughts and questions and just round in circles trying to figure what's happening in my body and that's so draining.

I am so miserable!!! I feel like I have hives yet there are no hives. I'm sensitive to heat, cold and clothing touching my skin. I can't stand to be hot but can't stand the airconditioning either. Also have a mild headache with it. I feel edgy and irritable. Keeps waking me up too. I want the die-off for sure but hope it doesn't stick around too awfully long or get worse :(  prayers please. 

Hi ladies,

I will be rounding the corner on my three year mark very shortly (October 7) and I am very excited to provide an update soon.  I was just approved to list 5 last week!  I do plan on spending some  time in providing details to my journey in getting my life back, however, it will take time for me to recall a lot, so much has happened.  There is hope so for the new patients, please go back to my previous posts.

All the best,

Adriane

Hello, I just wanted to share some hope and a little year in update. I walked into Boaz's office a year ago having just tapered from Benzos, having tried all the really useless prescriptions for medication that my western doctors, bless their baffled hearts, plied me with. I was desperate, depressed, and afraid because I had been told this was "incurable." I had bladder pain, mostly, much of the time, and it could be 4-9 pain level any given day, mostly 6. Today I have bladder pain a few days of the month, but rarely hits 6.

I have been very sick for the last week and a half with fever, nausea, and very high pain. After much contemplation, I have decided I need to see a urologist (Matia is encouraging this) to see what is going on.  My appointment is tomorrow morning.  Thank you for your prayers.

Last night I used a "regular" pad- Always Infinity brand because I grabbed it out of my basket thinking it was a natural one. I had gotten rid of those long ago but that one somehow stayed in the bathroom cabinet. anyway- i started to have violent itching  after about an hour. I changed the pad to a cloth one i had and the itching all but stopped. I was just amazed at that quick awful reaction!! I am using cloth again today because the pads always irritate me. Wish there was a better option! I've tried the diva cup and did not like it.

I went to an informative meeting tonight on this "Green Product" called Melaleuca. Has anyone heard of it?  Tried it? They told me that 7th Generation was just bought out by Clorox!!!  I thought about trying their cleaning and laundry products...only thing holding me back is they said that their "anti fungal" oil which they call Melaleuca oil is in all their products.  Obviously under our circumstances this concerned me.  As far as the cleaning products I use gloves...not sure though about the laundry soap.  Any of you have any input on this at all?  thank you.

Does anyone know why we can't contact members anymore. Is this something that can be re-activated? Is it something that will be an option later. It is hard because now old patients cant be contacted even if they agreed to be available.

I'm on day 3 of a pee every 10-20 minute flare and am mentally and emotionally worn. I was just curious how long your flares generally last.   I keep going to sleep hoping to be better tomorrow.