Hi.  I just got diagnosed with IC.  I had a cystoscopy which showed glomerulations.  My bladder was ok size at 1000cc fluid and then they extended it to 1100cc during surgery.  I had DMSO for 60 minutes.  I'm feeling much better.  Doing the diet. 

But I still have pain in my vagina.  Constantly.  Do any of you have only pain and no other symptoms?  Thank you.

Dear all,

Thought I'd post that, by piecing together everything Matia has told me, snippets from her dissertation and this website, I have finally worked out how I got this, why it went into remission and why it has returned. This is huge for me, given that, as you may have noticed, I am the type of person who 'needs to know how and why' :)   It all makes perfect sense now and this treatment, without doubt, IS on the right track. Hopeully, I'll settle down now, accept the inevitable (that this is really happening) and get on with it! 

So I finally did it... I went on a personal leave from work.

Please make the dissertation available. Many of us are very eager to read it because we want to understand more. Thank you.

Just a follow on from my call for help on Friday.

This is sort of random, but I'm trying to buy a new mattress pad and all the ones that don't cost $80 seem to be treated with something antimicrobial and I'm wondering should I steer clear?  Or would washing it before putting it on my bed be enough?  Also, what about those foam egg crate things, OK to use if it's been aired out?  I feel like the princess and the pea, but, you know...

Is anyone aware of when unbleached pastry flour is allowed?  Is this a later list or a rare occurence for list 3?  

Does anyone have a recommendation for food processor? There is so much cutting and chopping involved in this protocol. I was wondering if the processor would be helpful. Thank you.

Dear all,

I have just read a newspaper article about Crohn's disease - which sounds awful too - but it mentioned that in the UK, there are 60, 000 sufferers with it whereas there are over 400 k with IC! Yet, Crohn's is SO much more well known than IC. Isn' t that strange? Wish they'd invest some research money into it (researching etiology and prevention especially). 

I have a couple of questions. First when people travel with an airline where do you put your probiotics? In the past i always carried on what i needed for the day but the rest i put in my checked baggage. Is there any way they could freeze there and become in active? Do you put ice with them?

Another question about food i am on list 3/4 . What kind of crackers do you guys use? Seems like everything has small amts of sugar or preservatives ? Any brands i could look for i live in eastern Canada no Wholefoods etc.