I searched the forum and didn't see this anywhere so I thought I would share.
I tend to struggle with doing too much and exhausting myself, pushing too hard to be at normal energy levels when I'm not.
A good friend shared this with me, although we don't have lupus, the 'spoons' metaphor really helped me for explaining energy levels or lack of to people (and to myself).
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoo...